Hey,
I took a tilt table test a while back. The result was:
Laying down: 110 bpm
Upright: 145bpm
I was on Mirtazapine and Propanolol with the test.
Dx for pots is a raise in bpm by 30 from lying to standing (check) OR over 120bpm on standing (check).
I have recently received a letter from the nurse of the POTS specialist saying that the specialist (whom I have never met) has diagnosed me with anxiety and hyperventilation!?
I can say for sure that I would bet my life on not having anxiety. I know what anxiety feels like and I know I am no more anxious now than I was when I got ill, after a virus. I have fully commited to things like meditation, deep breathing, electric stimulation, ASMR, etc and have noticed almost no improvement in my symptoms. Furthermore, last time I was in hospital I was cleared by the psycologist from having any problems.
I can only think that he has looked at my past notes and found that other doctors have diagnosed me with this in the past when I was unaware of what POTS was. I find it mind boggling that he has Dx me with anxiety without having ever met me...
Last time I met and talked with his nurse. I am going again soon to see, I presume, this nurse again. What can I do to turn this around? I am struggling big time physically and without treatment for this I am in BIG trouble.
Thanks, Sean.