I am brand new here. Today is my 1st day after some time of looking around the web. Never thought I'd be online looking for a support group until I admitted I need support. I was an avid and active athlete until I broke my ankle in 2008. Tennis, skiing, you name it. In 2009 I was diagnosed with RSD (Regional Sympathetic Dystrophy). In July of last year, 2015 I was diagnosed with POTS. I am a 46 year old female and I simply feel like my body is a crock. I am so utterly sick of dealing with it alone. when trying to explain, people just dont get it. Why should they? I barely do ! Last year I had a skin cancer removed from my nose. Skin graft failed. Then had skin flap with massive reaction. I react to most medications. I dont seem to recover from routine surgeries, including my shoulder one, which 1 year layer doc said I had zero healing from 1st surgery due to no blood flow for healing ( I told them I was in pain all along)
Now, since April this year, I thought maybe I had now joined the ranks of gluten intolerance. it seems as though there isnt any real pattern to what I'm eating, it just seems to be food. I look about 8 months pregnant when I eat. My knuckles on my fingers hurt every morning. My joints hurt. I am headed to the Cleveland Clinic in November for 3 days of testing. I feel like a hypochondriac. I hate this. My solution is to now isolate. I really do look forward to hearing any advice or hearing that maybe, just maybe this is not just in my head.
Kind Regards
Rachel