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agregory757

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Everything posted by agregory757

  1. I had a CTA back in April when I was admitted to the hospital for "cardiac issues." They originally thought I may have had a PE but ended up being POTS. So I'm wondering if they will repeat the CT. I haven't heard anything from my POTS specialist, and I'll see him September 15 for a review of all my results and a treatment plan. I'm tired all of the time, even after sleeping for 9+ hours every night. I originally started with GI symptoms... Acid reflux constantly, and becoming very breathless after eating any "large" meal. They were thinking I had gastroparesis, but my 4-hour gastric emptying study came back normal. Still have pretty bad acid reflux, but unsure why aside from autonomic issues. I get brain fog, all the typical autonomic symptoms, and have a resting pulse of 94+ and even higher when standing. I've been taking propranolol but still running tachy. I get pain in my arms and legs and have really sensitive skin which is sometimes painful to touch, I'm awaiting my biopsy results for SFN. I had an abnormal QSART with very low output on my arms, and no sweating on my feet. I have pretty extreme heat intolerance and can't go outside at all if it's over 90. I had a 3 hour glucose tolerance test and a blood sugar of 38 on the third hour, so I'm also unsure what that means for me.
  2. I also had a low pyruvate level 0.1 and normal lactic acid (0.9) level. I also had a calcium channel antibody n-type level of 0.07. My doctor re-drew the paraneoplastic panel so I'm waiting to see what the second test says. I have researched paraneoplastic panels and have some anxiety about this test result. I'm waiting to see my POTS specialist next month to see what my next step is. Any advice for me?
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