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Jessica

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  1. I also have this and have varying levels of migraine pain daily. I have had it since July of this year. I just started a calcium channel blocker for some heart issues and I'm hoping that might help with the migraines too. If anyone finds anything that helps, please post about it!
  2. Hi Morgan! Woah- what a story! I'm not glad that you're back, but I'm happy we've gotten to interact and I look forward to getting to know you better. Wishing you and your son the very best!
  3. Hmmm... I'm not entirely sure, but I think they usually look at the ANA in combination with other tests. For example, I have a positive ANA. However, since all of my other tests run come back negative, they say I don't have an autoimmune disorder. Hope that helps or that someone who knows more can chime in ?
  4. That does sound scary and I'm glad your doctors are responding to your concerns. I hope you get some answers soon!
  5. Momandmore - Sounds like you might be around where I grew up. Messaging you now! :-)
  6. Hi mom&more! I wish that doctor would coordinate everything, but I've had a hard time getting ahold of him. I made a judgement call and decided to reschedule the autonomic testing because I honestly don't feel comfortable going through with it until the cardiac MRI is complete. I think VT can be much more serious if there are structural problems with the heart, which so far hasn't been proven with me. However, there is a possibility I have this genetic cardiomyopathy, so that is the reason for the upcoming MRI. That is interesting about the tilt table. There actually is a docto
  7. Hi Sarah! Thanks for the info. Is IST when your heart rate is just really fast when lying down? Mine is generally at a normal rate and will then shoot up randomly. I think a big part of that is these different arrhythmias that I have going on, although I don't think that is all of it because lots of times I will feel faint or "off" in the absence of an arrhythmia. Is there a specific test for IST?
  8. Stephanie - I have all of these neuropathy symptoms too! They can be so disturbing!
  9. That's wonderful! I need to find a doctor like that! I'm so glad you did :-)
  10. Thank you for your reply. My PCP had CFS leak on her radar, but the neurologist I saw didn't think much of it. How has your orthostatic part changed for you? Sorry for all of my questions! I wonder about reduced blood volume as a symptom since my blood pressure is lower than my "norm".
  11. Thanks, Katie! I think since it is past Oct 1st we are actually being seen at the same practice, but by different EP's. My EP is super nice, but not overly familiar with me and I don't even think is aware of the autonomic testing. We've only met once and my follow up visit isn't until the end of the month after I get a cardiac MRI. The reason I was still pursuing the testing is because I feel crappy all the time and have episodes of syncope/pre-syncope even when I haven't experienced the arrhythmia for a week or more. My original cardiologist (who I broke up with because they started to t
  12. Angelloz - Tell me more about the head pressure! It is such a bizarre symptom. Did you ever figure out what it was? Do you know what helped it get better or did it just eventually go away?
  13. Oh my goodness, I am right there with you Stephanie. Are you pregnant now or did you just have a baby? My heart goes out to you. I feel like I am falling through the cracks and doctors aren't figuring out what's going on with me since the birth of my second, which was a year ago.
  14. Hi, I'm Jessica and I've been browsing the forums for the past few months. At first I was too ill to type out anything that would make sense, but I've decided it's about time I say hello! This is the second time my body has gone somewhat haywire about 8 months after pregnancy. At first I was confident it was POTS or at least some form of dysautonomia, but now my heart isn't necessarily doing crazy things when I stand up like it was in the beginning. My blood pressure is on the low side for me and never went back up after my most recent pregnancy. If I'm hanging out not doing much, it's us
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