Hi mom&more! I wish that doctor would coordinate everything, but I've had a hard time getting ahold of him. I made a judgement call and decided to reschedule the autonomic testing because I honestly don't feel comfortable going through with it until the cardiac MRI is complete. I think VT can be much more serious if there are structural problems with the heart, which so far hasn't been proven with me. However, there is a possibility I have this genetic cardiomyopathy, so that is the reason for the upcoming MRI.
That is interesting about the tilt table. There actually is a doctor that was recommended to me that does not have an autonomic lab, but does the "poor man's version". Are you near CHOP? The only reason I ask is because we just took my daughter there to see a specialist recently. It was for something unrelated to all of this though :-)