Alex D.

What is your diet like. Are you over weight Do you exercise? They can have a huge input on cholesterol.

Hi, I wore a 24 hour halter and had 22,000 ectopics with a total beat co7nt of 99,000. Like 1 in 4 beats I was going crazy. My cardiologist tried several meds until we hit on Propofanone,, it’s a live saver. I still have a few ectopic beets, but it’s like 10-20 a day.

I had Bradycardia and tachycardia with extreme PVC and SVC’s. 22,000 ectopic beats found during a 24 hour halter monitoring. Cardiologist and I Tried many drugs but finally hit on Propafenone, works great for me.

I have used a Levine Protocol. This article is a good write up. https://betterbythebeat.com/the-levine-protocol-for-exercising-with-pots/

I would suggest a 24 hour halter heart monitor, This will detect the severity of Ectopic beets, PVS's and PAC's. An ECG is only a short snapshot. My 24 hour halter monitor detected 22,000 ectopic beats. This was out of 99,000 beats for the day, 1 in 4 beats was ectopic, I not am on a heart rhythm medication, Propafone, which has done wonders. My Ectopic beats are far and few between. Good luck!

I got the Moderna vaccination months ago, only a day or two of body aches. I have OH, SFN, many symptoms. Digestive, migraines, CFS, brain fog, etc. I personally think Covid will be with the world forever. Vaccinations will be essential, variants are stronger and more deadly. I really don’t think vaccinations are a personal choice for almost all people. The alternatives are more deaths and suffering. Sorry for the soap box talk, but I had a few friends that did not survive Covid.

My 24 hour holter monitor showed 22,000 PVC’s and PAC’s. My cardiologist said that they weren’t in themselves dangerous, but I insisted that we try and treat them. After several months trying different medications and discussions about an ablation we tried Propafenone. It all but cured the ectopic beats, a no more than 1-2 an hour. Hope you find a solution, it’s a real pain living with the etopic beats!

Try this, I’ve been using it off and on for about a year. I love it. https://www.wellplated.com/bedtime-golden-milk/

Hi, I’m on Lyrica and Pristiq. They help, but no cure. In a rather interesting side note, one of our cats developed something called “Twitchy Cat Syndrome.” it is an imbalance in the nervous system, similar to Dysautonomia. Cats was caused by a shock to the system from steroids. Our vet prescribed anxiety medication for the immediate issues, but also gave Stanley (cat), antidepressants to try and reset the nervous system. It worked, we slowly increased dose, then after a few months, we slowly weened him off. He is almost normal, still has spells of the Twitchy Cat, but very infrequent. So, it appears to work in cats! Good luck!

I have a lot of ectopic beats, but not afib. Don’t have a Kardia, but my wife has an Apple watch 4. We both have had inclusive readings, possible afib, got no abnormal issues with our cardiologist. take several readings and see what happens. Keep a symptom log,

Testing for gastroparesis is very easy, your GI doc should do a formal test. It’s hard to deal with, meds that help have a lot of bad side effects. My relief is mainly through diet, in my case it was trial and error.

Hi, I was diagnosed with very extreme ectopic beats, I wore a 24 hour heart monitor halter and had approximately 98,000 beats, ( normal range), my PVC and PAC count was 22,000. One out of four, cardiologist said not very dangerous but extremely troubling as the sensation would disrupt my sleep and my waking concentration. We tried 3-4 arrhythmia meds before hitting on Propafenone. Now almost no ectopic beats, I am very happy with my results. Caution, The Med has lots of interactions and you need to use it for a while to find good dose and to see if it is effective. Been on it for 2 years. Good luck, there are options, Alex

Try this, I’ve used in the past and seems to work. https://www.dysautonomiainternational.org/pdf/CHOP_Modified_Dallas_POTS_Exercise_Program.pdf

One person does not make or break a case.

I am hypersensitive to a lot of smells. Some will make me fill I’ll to my stomach. This seems to come and go for me. It can be food smells, perfume, flowers, etc.