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Alex D.

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About Alex D.

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  • Birthday 08/27/1955

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    Riding Harley, vacationing with wife, and learning and meditating every day.

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  1. Try this, I’ve used in the past and seems to work. https://www.dysautonomiainternational.org/pdf/CHOP_Modified_Dallas_POTS_Exercise_Program.pdf
  2. I am hypersensitive to a lot of smells. Some will make me fill I’ll to my stomach. This seems to come and go for me. It can be food smells, perfume, flowers, etc.
  3. I had 22,000 PVC’s and PAC’s measured during a 24 hour heart halter monitoring. My heart beat count during this time was 99,000. Near normal. But the ectopic beats were every 4th beat, it sucked. I could feel them 24 hours a day. Cardiologist had me try several arythmia drugs before finding Propafenone. I reciently had a 4 hour surgery and the anesthesiologist said there were insignificant number of ectopic beats. Seems to be working for me.
  4. Apple Watch Series 4 has highly reliable HR and ECG, Apple is workin* on BP for a future release. It’s expensive but it’s the best,
  5. Stay strong, it gets better. Positive attitude, meditation, medication, accupuncture and exercise. My process!
  6. Gabapentin works for me, only side effect is a little sleepiness. So I took at bedtime. Ok also tried Lyrica. Gabapentin seemed to work better for me.
  7. Hi, The issues with wrinkly fingers does not have very much to do with hydration. It has been proven that the wrinkling of fingers is caused by the nervous system. Dysautonomia can often cause wrinkly fingers without exposure to water, mine often go from smooth to wrinkly at a moments notice. Just one more of those Dysautonomia fun facts and symptoms.
  8. I use a traditional TENS unit for specific localized pain like neck and coat hanger, but I bought a Quell unit to try and minimize my fibromyalgia pain. It expensive, but they have a 30 day money back guarantee. its been clinically tested and will provide some relief in 80% of patients. I guess I’m in that 80%. Alex
  9. 180 is way too high. Could be POTS. Get it checked out. Also check your laying down and standing blood pressure. These are important numbers in a diagnosis.
  10. My dysautonomia started with heart issues. During a 24 hour halter monitor I had 17,000 PVC's and PAC's. Doc tried three meds and we were on the way to ablation, we tried propafenone and they are almost gone. There are lots of meds that can help, ask a cardiologist.
  11. My sends of smell is hightened at times. This disease is fo variable.
  12. I have exterior etopic heart beats. After my Neurolgy diagnosin, I get a full checkup from a cardiologist. Stress test, nuclear sresss test, halter monitor, and cardio catheterization. All normal.
  13. The peppermint tea is great, I also use on OTC pill for IBS. IBguard, it's a peppermint pill that survives the stomach to work in the intestines. Give it a try. Alex
  14. I run low 96-97 but dot that low. I do have cold sweats sometimes when my temp is low. Don't know why. No answers from docs yet.
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