Caretoomuch

I am new to this site so please bear with me. My wife has been sick for over 4 years now and the doctors are slow in identifying what is wrong. They finally decided she has Sjogren's syndrome, but it doesn't explain everything, especially her Neurologic symptoms. So I have been doing extensive research on my own. I cross referenced all her symptoms and it led me to P.O.T.S. She has 41 out of the 61 symptoms listed on this site. When we asked her neurologist about it she said. "I highly doubt it." "She has no low BP episodes upon standing." So she dismissed it. However she does have very high BP's example (158 over 102) which is not normal for her. Her usual would be in the 120 over 75 range. The main things she experiences is horrible headaches, lightheadedness, dizziness, weakness, and fatigue. These all get worse as the day progresses. At first we thought she had a spinal fluid leak, but again, the doctors don't seem to want to explore that. They do some tests, but never enough to absolutely define what is going on. I'm not a doctor but I am very intelligent and I can read. Does anyone out there have any thoughts on all of this? Your help would be greatly appreciated. Thank you!