My 10 year old son started having dysautonomia symptoms in February and was diagnosed with pots in April. He only made it back for a couple days during the last nine weeks of 4th grade. ( Also his 1 st year in public school)
So now as August approaches we are starting the decision of going back to
homeschool- easy in some ways since I have homeschooled for 16 years or
public school -he would really like to be there since his brother is moving to college and home will be lonely, but we are both concerned about how bad it would make his symptoms even if we do only a few afternoons a week.
He has just started doing things besides doctor appointments in the last few weeks. He made it to church a few times, had a friend over and went to a family get together...just simple things. He does seem better than a month ago, but it's frustrating to see him do so little and pay for it in exhaustion and physical pain. It makes me concerned that traveling and keeping pace with even a little public school will only slow down his recovery.
His main symptoms now are extreme fatigue, headache, brain fog, trouble getting to sleep, body aches, poor memory and of course trycardia.
Any words of advise from those who have been down this road before us would be appreciated.