Tachy girl

Thank you for the responses! My old cardiologist mentioned that I should try mayo. She sent me to the dr here in Kansas that deals with pots, but, I'm not really getting anywhere and he doesn't seem to ever want to deviate from his original game plan, and that's not working. At all. It does seem like a lot of people have to try different combinations of things before they find the med that helps. I will push on and try to find another dr who will be willing to experiment with different options until we find the right one for me!

Hello all! I have recently been diagnosed with neurocardiogenic syncope and inappropriate sinus tachycardia. My worst symptom right now is the tachycardia, followed by the passing out episodes. My heart rate will go from 70's at rest, to 200 when doing something as small as brushing my teeth. It's been so life altering. I've been out of work for several months, but they're now denying my disability benefits stating there is no reason why I can't be working. I have 3 doctors that have contacted them letting them know I cannot work right now. (I work in healthcare and my position is far from sit down), but the disability people are basing it off of my resting vitals...which are usually fairly normal. It's any move I make that sky rockets my rate. I have been tried on corlanor, midodrine, and now nadolol. So far, none of these have helped my tachycardia. I'm seeing the "go to" dr in my area for this, and he just keeps telling me to be patient and this will eventually get better. I have done the upping my salt intake, fluids, compression hose. Not sure what I should do or where I should go from here. I am not ok with, "it'll get better one of these days." Maybe he is right, but I don't want to believe there's nothing else that can be done. I feel for everyone here. These conditions are so life altering and most people don't even know what they are or understand them. I'm glad I found people who get it!!