EmD

I'm sorry the visit with the GI didn't get you many answers, doctors who aren't informed about dysautonomia can be frustrating from my experience. One of my biggest complaint has been the GI symptoms associated with POTS, what I've found to be most helpful is my own trial and error. I've figured out a handful of food I'm able to eat without too much complaint and on my worst days I'll try to have a few bites sporadically through out the day. I imagine everyone is different, but the food I've had success with are; mashed potatoes, meal replacement drinks-orgain is my favorite, refried beans, and rice. As I said it took some trial and error, but I find food that is already soft is easier on my stomach. Additionally I received a tip from someone else with gastroparesis and GI symptoms related to POTS that has really helped so I'll pass it on, try to stay sitting up for an hour after eating and if energy permits go on a like a slow walk around the block. I hope this helps!! Good luck!

Hi! Im really glad I found this forum. I've been struggling with POTS for years and in the past two months it's gotten the worse it's ever been. I had to move back in with my parents, I live in LA they live in DC, which has made an already isolating illness feel that much more isolating. I have a doctor that I've been seeing since I've been out here, he treats my younger sister another potsie, but I'm feeling like I need to see someone with a higher level of expertise. I've looked into the Mayo clinic and Cleveland Clinic so far. I have an appointment with CC in August and I'm waiting for Mayo to finish reviewing my information. Does anyone have experience with Mayo or Cleveland? Or any other clinics that specialize in POTS? I'm willing to try anywhere/anything, I'm sick and tired of being sick and tired. Thank you!!