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About Lissa1707

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  1. Hi everyone, It's been years since I have posted. I was diagnosed with POTS 5 years ago after a mycoplasma infection and was able to reach a place of function after the first year and a half with diet change (paleo) and midodrine and mestinon. The past year I have been in a flare with new symptoms after receiving the flu shot. It seems I'm having more general autonomic dysfunction than POTS. I passed out at home Saturday for the first time in a long time and I'm just at a loss of what to do anymore. Over the past year I have really struggled with GI symptoms. I've lost 8 pounds over the p
  2. Sam1, Can you tell me more about this device? I have an underlying arrhythmia and have done 30 day holters multiple times but haven't caught it on the monitor. We assume SVT based on symptoms but this seems like a great product especially to capture what the rhythm looks like she symptomatic. Do you have to wear electrodes? Also Spring--I too have the bounding heart rate without tachycardia sometimes. Mine worsens when I'm hypoglycemic or if I have just eaten but there's never a correlation to my BP or heart rate. Hormone cycle also affects mine very uncomfortable when it is occurri
  3. Thank you all so much for the support and encouragement. I can't tell you how much it means to me to have found others who understand
  4. Thank you both so much for the encouragement. I can't tell you how much I needed it Katie-the physician roller coaster has been the hardest on me. Getting my hopes up just to be let down again and again. If we decide to seek out another physician I think our next step would be Cleveland clinic or Vanderbilt. No one is impressive here in my state for knowledge base on POTS and I also have that gut feeling that someone is just missing something. Angie--I used to journal a long time ago and may need to revisit that. Nature brings me a lot of peace too! It's so hard down here because th
  5. Hi everyone. My name is Lisa. I am 26. I was diagnosed with POTS in September of 2013. Like many of you I am sure you have told your story so many times that it is literally exhausting when it's time to see the next new doctor because you have to go through all of it again but I have finally reached the point where I need support from my fellow potsies. So here's my story. In August of 2013, I went into an arrhythmia while at work. I am an ER nurse and based on my symptoms we all thought it was SVT. I had struggled with resting tachycardia before starting at 19 and since I went back into a nor
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