Ebrahimi

*hugs* I am really sorry you are having such a feeling. Sometimes i feel exactly the same.

Hi Sarah Thank you so much! At the moment i am on antibiotics because they think my dysautonomia is kinda autoimmune. By antibiotics i am noticeably better, even i can run slowly. After antibiotics maybe i try Droxidopa or midodrine. I found many helpful info in the forum. This is a great community with great members. Take care.

I hope the best for all of our community, which i am new to it, an i hope an effective cure will soon be found for dysautonomia.

Right. There are different kinds of PAF and symptoms vary from one to one. I have started to read published articles and books and i have not much difficulty to understand, since i am somehow a nanobiologist, but the more the paper i read the more i get confused! because there are contradictions in the results of researches about dysautonomia and many aspects of it are unknown.

I will talk about it with my neurologist, but as i searched the main symptoms are 1-gastrointestinal, 2-skin and 3-O.H. and i dont have any nausea, vomiting, diarrhea, abdominal cramping or skin condition. Did u have these symptoms?

Thk u for ur responses. Reading the forum and the network was helpful for me. meanwhile i am somehow confused, my suspected diagnosis is PAF but it is not certain. i have another symptom that, as i read the site thoroughly, i guess is not common. when i change my position, my BP falls but it recovers after seconds and i can stand for a long time. i think maybe its the onset and it will develop and in the near future i can not stand.

I have experienced dysautonomia like symptoms since 2013. For the first two years, i did many tests (several blood tests, several 24 h urinary tests, brain and adrenal glands MRI, endoscopy, sonography, ecocardiography, etc.) but the illness was not diagnosed and different doctors said different things. In the last months i have been diagnosed with Pure autonomic failure, but some of my symptoms are non-specific. i want to know is there anybody with symptoms similar to mine? my symptoms are: - Postural hypo-tension. ( I do not experience postural hypotension constantly, somedays my postural hypo-tension is severe and i experience severe dizziness, heart palpitation (hard heart beat) and severe breathless when changing position or after eating, but somedays i am good and the postural hypo-tension becomes mild.) - hypohidrosis ( I am experiencing severe hypohidrosis and severe heat intolerance) -I do not have supine hypertension (which is common in PAF) -i do not feel better with salt and sometimes it causes dizziness. Is anyone with the same symptoms? specially irregular postural hypo-tension. Tank you