tinksflight

I am also medication free...I down the water..3 liters a day...Crave and down alot of salt also.. I use celtic sea salt because it still has all of it's properties unlike reg. table salt.I also use licorice root , one tab in pm.& a multi vitamin, and when my POTS is shifting into high speed I have Klonopin...I haven't used it but twice in the past 8 mos. Sugars seem to cause those inner tremours so I try to avoid them , therefore I don't drink much gatorade.. I was taking florinef along w/ zoloft and the klonopin when at my worst...I have had POTS diag. for 1 1/2 yrs. now and have been doing better with out medications...However..I go through alot of bad days before having good ones and sometimes wish I had something to pick me up..Yet, I am terrified of all medications...Have been talking to my Dr. about taking something for the pooling in my lower limbs...Not too sure what to do but I do plan on staying "as med free as I can" for as long as I can..

I am a new mother, I have a 5 mos. old and prior to him there are 8 others..However, just this last one counts as a POTS pregnancy..I have had this illness atleast 2 years now, that I know of anyway.. If there is anything that I can help you with, I would be happy to do so.You can e mail me at cuzIcanave8@aol.com. You have come to the right place ...Everyone here is so helpful and so supportive..Even though I went mos. without even saying a word ...I read everything ...every night ...Just sobbing ...I didn't know what to say... I was in complete denial... I hated this new illness that had taken over my life and wanted it to go away... But ...as time went by...I landed my space ship...Came back to reality.and found that the strength of all these wonderful people here on this forum had actually helped to ground me... So A Big Thanks to everyone..... And always feel free to ask any thing.. Most of us here know more than the Dr.'s do about our illness... pamela

i'M SO SORRY TO HEAR THAT YOU ARE HAVING SUCH A HARD TIME..THE DR. THAT YOU ARE SPEAKING OF IN MANASSAS..IS THAT DR. ABDALLAH? IF SO, FEEL AT EASE...I SEE HIM IN AN OFFICE IN HAGERSTOWN MD....OH...BY THE WAY I AM IN WEST VA. JUST 4 MILES FROM THE VA. STATE LINE...I HAVE A DR. IN BALTIMORE THAT IS IN CHARGE OF MY CARE, YET NEEDED SOMEONE CLOSER THAN HIM FOR THOSE DOWN TIMES... I HAVE HAD VERY MILD SYMPTOMS FOR THE PAST FEW MOS. ONLY DUE TO THE FACT THAT I JUST HAD A BABY AND AM STILL SEEING THE BENEFITS OF THAT...CAN'T SAY WHEN OR IF IT WILL EVER COME BACK AS BAD AS IT WAS..I KNOW THAT I WILL DO WHATEVER I CAN TO STOP THAT FROM HAPPENING...HOWEVER I DON'T KNOW HOW OR WHY I HAVE POTS...IT CAME ON QUICK.....I WAS DOWN AND HAD NOT A DAY WITHOUT SYMPTOMS...THEN 3 MOS INTO IT I FOUND MYSELF TO BE PREGNANT...IT WENT WELL AFTER THE 5TH MONTH...BUT STILL HAD ALOT OF SYMPTOMS...NOTHING COMPARED TO BEFORE THE PREGNANCY THOUGH..FEEL FREE TO E-MAIL ME AT (CUZICANHAVE8@AOL.COM) IF THERE IS ANYTHING THAT I CAN TELL YOU .. THAT MAY BE OF SOME HELP TO YOU THAT IS...THIS FORUM...I HAVE SPENT MOS. HERE JUST READING..I NEVER REALLY WROTE ANYTHING TILL A WEEK OR SO AGO..BUT THESE PEOPLE HERE ARE THE BEST SOURCE OF INFO...THEY HAVE BEEN OF SUCH GREAT HELP TO ME AND THEY DIDN'T EVEN KNOW IT...SO STAY CONNECTED AND YOU'LL STAY INFORMED BY SOME OF THE BEST...AT TIMES I BELIEVE THAT THEY AND I MYSELF HAVE MORE OF AN EDUCATION WHEN IT COMES TO POTS THAN MOST DR.S OUT THERE..GOOD LUCK TO YOU...THERE WILL BE BETTER DAYS...OH AND HAPPY BELATED 21ST...

Hello...This is my first post ..Just so you all know I've been here for months.Iwas diagnosed w/ pots right around the time I found out that I was expecting my last baby..Which was born in November. I was sick for several mos. prior to the pregnancy and was diagnosed w/ everything else but pots.. I had to search the east coast to find anyone that had any idea as to what in the **** was going on with me...I am a mother of now 9 beautiful children and have always lived a healthy active life...I was, as I'm sure you all were "crushed"... I have a degree in nursing and 2 yrs prior to pots I had decided to go into emergancy care..so I started training to be an EMT..I completed this 2 mos before any of these symptoms ever started.. But just to help you feel a little more at ease with what you are going through, Don't be afraid of what you are about to experience...It is ok to be concerned... My pregnancy was just a little worse in the early stages than it was in the last trimester...I had alot more tachycardia and digestion problems...The feeling of not being able to breath or the maybe it was just the constant chest pains that scared me so badly...I had visual disturbances and many ...many other symptoms...The thing that bothered me the most was the constant fatigue..I just felt totally drained..The only medication I was taking was the florinef..which is a joke...And Klonopin..Which makes any joke funny...! I was able to stop all meds by my 5th month and started feeling better each week. As the pregnancy progressed I noted that the symptoms were very mild..So I had a life again ...And I felt as good as I had before this pots came about.. I had an epidural...I was kept very hydrated...monitered by the team that was assigned to me and had an outstanding delivery after 9 hours of labor.. My son is now 2 mos. old...My symptoms are still so mild on most days I forget that I even have pots...I feel the tachycardia...I have some slight lightheadedness and pooling in my lower limbs... I am greatful for every day that I have,,My son has been my haven from pots..I am so thankful for him...And so blessed to have him ... I am not taking any meds at this time, just 2 multi vitamins, an extra iron tab.and drinking 2 liters of water each day..I have replaced my table salt w/ celtic sea salt and find it to be more helpful.. I Wish you the best...I feel very confident in saying that, you know your body better than anyone ...And when it comes to something like pots..where all of the answers are missing...You need a Dr. you can trust...And when you want to add a pregnancy to the pots... You need to know that there are others out there who have survived it and have the most Awsome stories to share..

I have two volunteers ...actually I have three that would love to do the babysitting at no cost to anyone... It' s important that everyone who needs support, recieves it... I know how I felt before I found anyone that even had a clue as to what I was dealing with... We'll make it work...Besides..We're already off to a great start...Don't you think.. We'll talk more later.. Pam