Therussianmoose

Angelloz, good luck!

Katy, thank you so much for all the information! That website has been very helpful, so thank you! Dizzygirls, I do hope you are able to figure out what is going on with your daughter! Best of luck! Thank you! Sarah, thank you! Angelloz, thank you! I'm so sorry that the H1/H2 inhibitors don't work for you! When you had your bone marrow biopsy the first time did they check to see if you had that mutation that makes it so you can't tolerate the h1/h2 inhibitors? Maybe that is why you can't tolerate them? I hope you'll be able to figure out what is going on!

So I'm going in for a bone marrow biopsy next Thursday for suspected Mastocytosis, and of course in very nervous. To pass the time I had a couple of questions that maybe some of you could share your experiences with: Why do they have to get tryptase from the bone marrow? The tryptase in my urine was elevated, but not too high, so I'm wondering if that will be a good indication that I don't have Mastocytosis? And I was wondering if others could share their experiences about having discontinue histamines, Benadryl and Alegra, before? Thank you so much for taking the time to read my post!