Sassyred

Ancy - How can SSI without an official declaration from a doctor? I assume your primary declared you to be out on DI? statesof - Cross-eyed issue - I know that I am not, it feels that way and causes nausea when I can't focus. I get nausea not just from inner ear but eye motion too.You do sound like me, as it takes you days to feel "normal" again when you fly.I first fly when I was 9, never expected any issues, but had bad inner ear pain. Then when I flew after that the motion sickness started. Like I mentioned, the Bonine helped for many years, so shocked when it stopped working! I'm lucky that I really don't care about traveling. (that said most people love it, so it would great to be able to) It seems to me that it could be motion sickness w/POTS. Regardless, car, bus, boat, plane, ugh. Even if I sit still and the screen has too much motion or that roller coaster thing they show at the beginning of movies sometimes, I close my eyes! Again, nice to found this board. I thank you for sharing. It is all in a effort for all of us to feel somewhat normal! So now it is just finding someone who has those wierd "needle" pains in the heart when they breathed, when they were a teen.

Does anyone know if anyone goes out on "disability" due to POTS? I thought about this, it may just be too much as I get older. I am very blessed to be working at home these last few years. I work til I can't stand and need to lay down on bad days. But I remember the bad days at work. I would expect POTS to get worse as i age, because I have not outgrown it yet.

Thank you for the link.

I am new, this is my first post. My friend suggested this board to me. She told me about POTS as she knew I has the same issues as her. That was almost 2 years now? She never experienced these two issues and so I will ask if anyone had them that is on this board. When I was a teen going to school, I use to have episodes of lightheadedness and always thought it was low blood sugar. Then one day ate this great big breakfast, stood up from the couch and everything went black, I held on to the couch. I never knew what it was until my friend told me POTS! It's obvious that I have had POTS since at least my teens. The issue I had way in my 20's (I'm 54 now) was unbeknown to me my pupils would dilate our of the blue. It happened once in front of my mom's friend who was a nurse, she asked my mom if I was on drugs. Then it happened at an eye doctor appt and they said I didn't need drops to dilate my eyes! Never knew what that way until my friend said POTS and I read UP! I use to have episodes the past years where I felt cross eyed & bad nausea driving or throughout my day. *Has anyone had this issue here? The other issue my friend never had, was when I was teen, can't remember how many years it went on for, but I use to have this pain n my heart when I would breathe. It thankfully happened for seconds to minutes but it happened out of the blue and felt like a needle would go in my heart when I breathed. I am not a doctor person (such fears of pain, needles, proceedures, tests) I won't go unless I have too and "I" can't treat me with homeopathics. When this pain would occur it hurt badly and scared me. At some point it just stopped. NOW I am thinking this had to do with POTS? Maybe some growing spell issue. *Has anyone experienced this issue which I have not read anywhere, yet? Another question: I always assumed I had terrible motion sickness since I was a kid, I could not even do elevators as a kid w/o nausea. I use to take Bonine to fly, until one 45 flight to Vegas I was sooo sick throwing up the whole way there and back, I swear I would never fly again. As I crawled off the plane that trip, some guy followed me and said he use to be like me and wears the patch to fly. The bad thing is IF that sick, it takes me 7 days to feel normal again. NOW, how much of this is POTS and not motion sickness, or is there no way to ever measure it. I hoped and thought I would outgrow it. But I did a late night work gig with the boss a few times and the car rides made me so sick I wanted to die of nausea. I'm glad to find this board. I am GF and DF, eat organic and healthier than ever and I still have bad days I tend to forget it is the POTS and wonder what is wrong with me! It has been so very frustrating as you all know here. Mostly my issues now are migraines/nausea. This can be bad if my body won't digest food that day! (feel hungry ALL day even if I eat frequently- my friend has this) I can take off and put my sweater all day long within 5-10 min intervals due to body temp. I thought it was hormonal, lack of HRT. (wont take due to breast cancer) I need to sleep on two pillows the past couple of years. It's great to find "others" with this just because for so long you can't understand, even when you "think" you are doing everything correctly, you can feel sooo sick. I joke all the time I have blood like a snake, NO warmth (until the sweat happens) but usually cold hands/hand.