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ASR21

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  1. Hello helpforthecure, First off, let me say I am NOT a physician, but I have a degree in clinical laboratory science and run lab work daily so I have a little knowledge on the subject. Low potassium can be caused by dehydration. People with dysautonomia have a low blood volume, which means we are basically chronically dehydrated so it could very well cause your potassium to drop. Also, POTS isn't necessarily based on your blood pressure. It used to be called orthostatic hypotension because it was originally thought that only the blood pressure was affected but was changed to POTS (postural orthastatic tachycardia syndrome) because it was discovered that a lot of the symptoms were actually caused by an increase in heart rate when standing. I have been extremely active all of my life and have always done intense workout programs, but I often find myself out of breath or that my heart is racing just from doing very simple tasks. So your symptoms very well could be from the dysautonomia since they've done all the cardiac testing and can't find anything directly related to your heart. However, like I said, I'm not a doctor so don't take my word as gold, but hopefully you can find a little solace in the fact that you are not alone in your symptoms. Hope this helps!!
  2. Hello everyone!! I've just recently been diagnosed with POTS/dysautonomia and I know that swelling in the hands and feet can be a problem, but has anyone ever had swelling in just ONE leg? For the past few days my left leg has been swollen and felt tight from the knee down. It isn't really painful, but it's difficult to straighten my leg out all the way. Just wanted to see if anyone had experienced this due to POTS/dysautonomia before making another trip to the doctor. Thanks!!
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