tampafd

My normal is 58-62 laying down, 70's sitting and 84-100 standing

Yes, I have tried this drug the urologist prescribed for my interstitial cystitis and did not help me at all. I seem to do better on Vesicare. Going back to the doctor in 3 weeks. Hoping he will change my medication. By the way the myrbetriq had no side effects on me. Good luck

So frustrating that there are no doctors in the Tampa Bay area that specialize in autonomic disorders. When I found a neurologist 45 minutes from home and tried to make an appointment, I was told he was on a sabbatical and unknown when he would return. Made an appointment with another neurologist but it's not till November 23rd. He may just blow me off like the last neurologist and tell me there is nothing he can do for me. Told me to go to the Mayo Clinic or Shands Hospital in Gainesville but I can't even get my insurance to pay for the tilt table test my cardiologist ordered. Carlos

I had the tilt table test about 3 weeks ago. I have orthostatic hypotension. After not having much of a blood pressure dropped the first 23 minutes my blood pressure crashed at 24 minutes dropping to 60/30 causing me to pass out. I am 57 and I have never fainted in my life. So i say the test is pretty reliable.

I take it at night to help sleep.

Since developing this autonomic dysfunction or whatever it is I have, I will wake up in the middle of the night and can't fall back asleep. I have always taken meletonin but it not as effective as it use to be with this condition. I have added benadryl to aid in sleeping.

I am 57 years old. When I was 18 my original family doctor diagnosed me with celiac disease after several doctors told me it was all in my head and did not believe in gluten intolerance. One doctor put me on bran cereral. Thought I was going to die. It's amazing how much incompetence there is in all professions out there.

I took the tilt table test 3 weeks ago and still have not fully recovered. I fainted 24 minutes into the test followed by bad nausea and throwing up. Now I wake up every morning feeling nauseated and most of the time need to take meds for the nausea. Carlos

My flare ups happen at any time. But lately I have felt nauseated every morning for some reason. It has been 3 weeks since I fainted during my tilt table test which has made things worse. Carlos