Gatorlily

Hey all! My husband and I want to have another child, but now that I have a POTS diagnosis, I am hesitant to start trying. Does anyone have experience with pregnancy and pots? I would love to hear your experiences.

Thanks, Katybug and Momtogiuliana! I can't wait to try the coffee suggestion! Although, it does seem counterintuitive, I can also see why it might work. I will also look into Dr. Weil's book.

Hi, I'm new to the forum. I have been diagnosed with POTS for about a month now. My doctors know nothing about POTS, so I am pretty much on my own until I can find a better doctor. It seems like the top doctors that treat POTS have ridiculously long wait lists. So until I can actually see a doctor, maybe I can get some answers and/or reassurance from this community. I have done quite a bit of research on the illness, but I am still confused by some of my symptoms. I initially got diagnosed with an arrhythmia after a 24 hr holter monitor. I was prescribed metoprolol (12.5 2x day). The side effects were horrible and it lowered my bp too much. I was pretty much dizzy and fatigued all day. Also, an arrhythmia wasn't making sense to me given how I was feeling. So, I asked for a tilt table test and that's when I was diagnosed. My resting hr was 65, standing 100, after 10 min 180. My hr increased 20 pts(systolic) after 10 min as well. But my bp is low the rest of the time. I was then switched to pindolol bc that's not supposed to lower my bp as much. Wow, what a bad idea that was, the drug was actually given me tremors and the adrenaline feeling that I often experience. So now I am off all medication and im going to try acupuncture. I am also loading up on salt, fluids and slowly trying to get back into an exercise routine. The thing I am struggling with these days is my racing heart before I fall asleep. I don't understand why my heart pounds and races while supine. Does that happen to anyone else? Also if anyone has any input about my bp increasing during the tilt table test, but it being low the rest of the day. I've read about hyperadrenergic pots, but it seems like someone with that subset tends to have higher bp throughout the day. I would appreciate any comments/suggestions anyone has for me. Thanks!