CircusCat - yes, I can "relate" to your situation. I am in my late sixties, have had symptoms since my teens, and only began getting diagnoses a few years ago. I live in the SF Bay area and went to Mayo Clinic in Scottsdale, where they began to make connections. Compounding things is that I have multiple problems including a congenital Cerebral Cavernous Malformation that causes seizures, migraines, and contributes to my dysautonomia because of where it is located. I also have sleep apnea, labile hypertension - the list goes on. One of the most confusing things is my diagnosis of idiopathic edema, which limits my intake of liquids. I have done follow-up at Stanford for several years. The Autonomic Clinic is good, if you see the 'real' doctors. The director of the clinic did my testing and gave me the diagnosis of primary dysautonomia. He's a good guy. But even he is confounded by the constellation of all my symptoms and diagnoses.