CoCoNutNut

When I was was first diagnosed with POTS about 7-8 years ago, I had LOW blood pressure with tachycardia (I also have low blood volume), and was put on Midodrine 3 times a day. It helped raise blood pressure and lessened some symptoms. I eventually weaned off Midodrine and was mostly symptom free for a while but recently my POTS came back. This time I had HIGH blood pressure with tachycardia. My cardiologist could not put me on Midodrine since it raises blood pressure. I was put on a beta blocker (Metoprolol extended release), and it has helped with both tachycardia and lowering my blood pressure. I was nervous about taking the beta blocker, and it took some getting used to, (I started off taking half the pill for the first 4 days, then took the full dose (25mg), and it helped a lot. I hope your daughters doctor will find the right medication & dosing, it may take trying a few different ones, since everyones bodies are different and adjusts/reacts to medication differently.

Sunshinegirl, that helps, thank you for your reply! Pain is a huge factor for me too. I tend to over do it, in everything, but as I get older (I'm 45), I recover slower. My pain management Dr. keeps telling me "you're not 25 anymore, accept it and move on". I just wanna punch her! Badhbt, 10 years is a nice break! How are the symptoms when you had your relapse? Same, worse? I'm in the same boat, as I don't think I'll be able to join a workout program anytime soon! I do however believe that if/when I get to a pain free point, I could exercise again and it would help alleviate some symptoms. I'm curious as to how many actually have long remissions and what factors contribute to being symptom free. I know it's different for everyone.

Greetings, I was wondering if anyone has had POTS or dysautonomia go away for a period of time and then come back? I'll try to make a long story short: I was diagnosed with POTS in 2008, prescribed Midodrine 3 times a day, increase fluids & salt etc. I responded well and in 2010 weaned myself off medication. Became extremely active, played softball and did Crossfit. I sustained many injuries over the past few years, torn calf muscle, shattered clavicle, but I recovered fairly well and life went on. In late 2013 I fell off a pull up bar while doing Kipping pull ups and landed on my back. I still have back pain, I have 3 bulging discs in my neck, now I possibley have TMJ, I'm going through early menopause, and I went from hypotension to hypertension and my Tachycardia came back. POTS is back but my cardiologist couldn't put me back on Midodrine (obviously), so he put me on a beta blocker and is referring me to a neurosurgeon for my neck. It's difficult going from being super active to not being able to do a fraction of what I used to do. I did read that injuries, trauma, & stressors can induce symptoms again, I was just wondering if anyone else has gone through a period of time of being symptom free? Sorry I was unsuccessful at making this short!

Thank you for the warm welcome! I First discovered this site/forum in 2008 when I was diagnosed with POTS, but I didn't become a member at that time. I guess I am at that point where I need to connect with people who understand. I look forward to learning!