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Everything posted by Rebecca2z

  1. Aww, I am sorry to read all you have gone through. I know applying for benefits is over the top stressful. I remember when I went though it many years ago. I just wanted to encourage you to take the break away from it -but don't give up. Find a better law firm and please know that most people have a hard time getting SS. There are lots of people who are dying don't get approved. It is standard to be denied the first go around, appeal and get the benefits you deserve. Have friends and family write what they see and write about how you used to be. Maybe find a new doctor or let SS send you to one of theirs. Also there are lots of good tips on line. Don't give up, you can do this !! Good Luck, Hugs, Rebecca
  2. Hi Stefanie, I am glad to hear you are finding some relief from the IV saline. I wanted to say that I have a port that was placed about 3 years ago. I also have EDS and the surgery was no problem. I had more issues with the anaesthesia. The local anesthesia didn't numb me at all so they knocked me out and when I woke up I had a brand new port. I love my port, it is so easy to take care of. I also have a picc line and I am not as thrilled with that as I am of the port. ( keeping the picc line dry is hard ) Your port will make your IV's much much easier, I think you will be pretty happy with it. My doctor was just a basic surgeon at Stanford, I don't really know what his title was, he knew very little about EDS, but he had put in many ports. I think the ports can be put in under a local anesthesia but since you have EDS I am not sure if you can get numb. I hope you find a doctor soon and can get back to school ! Hugs, Rebecca
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