brilliantlycrazy

@Pistol I'm hyper pots also. Been on prednisone for six weeks, tapering from 20 to now 5 for lung issue and I have to stop. I didn't take any yesterday and I'm feeling HORRIBLE. But I'm going back to Vanderbilt next week for new Autonomic function testing so I have to be off of them. I've also had a headache since September 23. I didn't even relate that to the steroids! My muscles hurt so bad I can barely walk. And my blood vessels feel "bruised" in some places. Thank you for sharing what happened! Please tell me you are better now!

Has anyone had issues finding methyldopa and if so, were you able to get it and where? I have three months supply left and all the pharmacies within three hours of me (In Georgia) say they may not ever have it again. I’m hoping someone uses a mail order pharmacy that I could use. I have hyperPOTS and this medication literally saved my life!

Hello all. I arrived in Nashville last night and begin my testing today. I just found this site the other day and started reading about an hour ago. I have been terrified for quite some time. I don't wish this on anyone but it is amazing to see that others know how I feel. Thank you all for sharing your stories.