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jonathan77

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  1. I use 30-40s. I finally decided to use waist highs instead if thighs and that has made a large difference. They turn a nonfunctional day into doable
  2. I take Nadolol(beta-blocker) florinef, and sodium tablets. The nadolol has done wonders for the rapid heart rate. but the florinef hasn't seem to do anything for the bp drops. I actually have had the most benefit from compression hoses, extremely tight ones.
  3. I did the holter monitor deal. Whenever I was having my worse episodes the holter monitor correlated, my heart rate dropped to the 30s for about 10 secs then shot up to 180s. My blood pressure's dropped at the same time. but there wasn't any ventricular or atrial irregularities other than bradycardic then tachycardic
  4. this is one of the first things I notice when a strong spell is coming on. My hands turn the colors just like you mentioned. Then the veins are popped out all over my hands arms and legs. So inflated they feel tight to push on. My hands even feel like they have pressure inside them. I get this when standing very long or after getting hot. Like standing in a line at walmart. Ill feel kinda woozy then the hands. I know I don't have long to get down after that. My wife can tell when I'm having an episode without asking just by looking at my arms and hands.
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