Jerry

I'm afraid the low carb diet won't help me. I've been low carb for a decade. Haven't had sugar in ten years, so I don't really know what to do. I do think you're right that we might have to look towards endocrinology, so far neurologist hasn't really found answers.

I've been checking my blood sugar per suggestions here. Wow, what a surprise. My usual level is between 96 and 106, been that way for years. Now I'm seeing readings in 110s and 120s, even a fasting 139. I've never seen readings like this before. I don't eat sugar, haven't for a decade. Since I've developed whatever I have, perhaps dys, two months ago, I'm eating very little and losing weight. My blood sugar should not be going up like this, I think.

I checked my glucose the other morning, and it was a slightly high (for me) 107, so no hypoglycemia. Maybe you're right about looking into a glucose intolerance test.

Yeah, Shan, I was on Zoloft before and it did cut libido, gave me the runs and I put on 50 pounds. I got off it. But now my doc has me back on it, not for anxiety this time, but for Dysautonomia.

Mike, I get the same thing. It's just started in the past month around the same time I think I got dys. It goes on most of the day, but is worst in the morning, sometimes uncontrollable. Eating also sets tremors off, but not nearly as badly as simply waking up. Has me confused and concerned. I saw a neurologist and she doesn't know, maybe thinks it has something to do with Cymbalta discontinuation a couple of months ago, but it seems to me as though it's related somehow to what I think is Dysautonomia.

Merlin, reactive hypoglycemia seems like something worth looking into as well. Eating's definitely a trigger for me for all my symptoms, the bradycardia and the trembling.

Science girl, so hypoglycemia triggers adrenaline? When I get these shakes it feels lot like adrenaline. I've never heard of noradrenaline before I'll have to look into it.

Thanks, Looney, that's encouraging about Zoloft helping. I need a little hope that something can improve this. I've been on it for a week, so no effect yet.

Chaos, thanks for the advice. I think I will pick up blood test kit and start doing some testing.

Looney, so sorry to hear about your son's problems, but glad that you've made progress. Thanks for the information,

Yes, seems like my attacks are like some of the one's that have been described above, confusion, nausea, shaking and I also get the thing where it's almost like I'm freezing, I shiver and shake, even when it's warm. The problem is that I had blood work a week ago and my glucose was fine. I've been thinking about getting a test kit and checking it throughout the day.

Thanks, Becia. It's great that you have a neuro who's willing to pull straws like that with you. I haven't met mine yet, I'll see her this Thursday.

I've been trying to figure out what all this new, terrible experience means. Many of my symptoms are consistent with dys, some kind of vagus problem, excess vagal tone, leading to bradycardia, but I've also got other symptoms, tremors, weakness, trembling which are consistent with hypoglycemia. Are the two things ever linked. Can dys lead to hypoglycema. I am not diabetic (at least not that I know of).

Thanks,

I'm getting muscle tremors too, not just after exercise, but throughout the day, especially in the morning, though. Cortisol? Hypoglycemia maybe? That latter might fit with your exercise tremor. Does it get better with a sports drink?

a mile hike or a 20 minute mowing session is about what I do now. I used to train like mad up until a month ago when this thing, this dys or whatever it is, hit me. When I exercise now, I tend to have increased nausea for the rest of the day. Why do it? Health. It's good for my heart.

• So sorry, Becia, that it made things worse for you. It's really hard to anticipate how different people react. I'm on 25 mg for the past six days and I see no change at all.

I had taken it before, led to weight gain, then I got off it and the weight left. But my doc has me back on it now because he says it's the standard treatment for excess vagal tone.

Thanks to both for the detailed answers. I'll take my pressure tomorrow morning in phases to see what I learn.

Yes, I do lean towards neuro rather than endocrine, though I really don't know one way or the other. Everything seems to be pointing towards some sort of dys, but centered on the vagus, because of my bradycardia. The thing which is perplexing me is the tremors which I don't how they would be vegas related, or maybe I'm wrong. I see how the vagus would affect my heart and my digestion, but not how it would cause this trembling in my arms and trunk. Am I missing something, can vagus damage cause tremors and twitches?

I'm afraid my neuro is just a regular neuro. I tried to skip that step and find an ANS specialist, but I couldn't, my Primary's starting me with just a regular neuro. I don't mind that entirely, because these tremors have me worried about CNS too.

My doctor was not attuned to ANS issues, but responded to my suggestion because he had just recently had a patient who had sustained vagus damage, and was about to get cardiac surgery before they figured out what was really wrong.

Thanks to both of you, and any other insights which come to mind as you read this, would be received gratefully.

I'm very new to all of this, but I've seen some indication, and my doctor has told me, that SSRIs such as Zoloft are a standard treatment for a Dysautonomia affecting vagal tone. Have you heard that before? Any experience with it? Looking for a little hope that what started with me a few weeks ago might not be the rest of my life.

Barrall techniques? Never heard of it. Does it work?

It's good to learn that some people have noticed a connection between surgery and dys. I mentioned this connection to my gall bladder surgeon and he said that he'd never heard of such a connection, but I was sure that I read it somewhere.

That's interesting, Becia. I've wondered if maybe I had something already which got magnified by surgery. I've had some vagal issues throughout my life, but never anything like what happened recently. Sorry for your troubles. This stuff is no walk in the park.

thanks for all the guidance, the blood sugar thing is worth looking into. I've been sugar free for ten years, but that doesn't rule out endocrine issues messing with my blood sugar.

Now about this TTT, what am I looking for with those reading, what is a confirmation? Dropping BP, lack of rising, slow rising? How does one interpret that data?

thanks. I've wondered if the causation was the other way around, the neuropathy causing my reflux and GB failure but I'd also seen some stuff about surger causing dys.

So what's different in the morning? Cortisol, glucose, TSH? Something's making your and my symptoms different in the morning than in the afternoon.

I have symptoms consistent with Dysautonomia. My theory is that it's some kind of vagus sensitivity or damage. My primary shares that theory. But from what?

This past spring I had a gallbladder removal and three esophageal ablations. Can that type of trauma trigger ANS damage? Have you seen that happen? Is it plausible?

Also, this all started when I went off my reflux meds (a PPI), just five days after. Can reflux cause vagus damage or sensitivity. My bradycardia, and nausea, and dizziness, all started when the reflux came back a few months after recovering from the surgeries. Any help, shared wisdom or experience would be more than welcome.