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About Mamawithpots

  • Birthday July 27

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  1. Just in case that didn't make sense.... Are all of the other symptoms a reaction or result of rapid HR? So without the rapid HR would those symptoms no longer exist?
  2. We welcomed our little baby boy into the world last week. For those of you who know me I was very nervous about delivering with my Pots. I delivered at 37 weeks. I went into labor before the induction date. The delivery was super fast, but resulted in an emergency c section due to non Pots related reasons. Both the baby and I are fine. I am recovering from the c section. My heart rate does not seem to be an issue anymore, hooray! But I do think my other Pots symptoms are in full swing. So my question is, can Pots symptoms exist without rapid heart rate? Or is it all dependent on HR? I am trying to figure out if the symptoms I am having are related to my c section recovery, the meds I am taking for my c section, or Pots. Here are the symptoms I'm having: brain fog, dizziness (sometimes it feels like I'm floating), constant head ache (going on 3 days) the shakes, plus all the stomach ache/pain. Everyone was so positive Pots was going to disappear once the baby was born. I would love that to be my reality. P.S. Writing this with complete lack of concentration, hopefully it makes sense.
  3. Hey guys, I am 36 weeks pregnant and getting induced in the next 2-3 weeks. I was diagnosed with Pots only a couple of months ago. I have all the usual Pots symptoms and they are bad enough that I am bed ridden. I do not have doctors with Pots experience, they learned about it because of me. I am really nervous about delivery! I'm worried that my heart is not going to be able to handle it, or that I will faint in the middle of delivery. I don't understand how I pass out with stairs or standing/walking for a few minutes, but there's no concern for labor and delivery. I've had 2 babies, I know how hard it is. Their plan for delivery is: to admit me the night before and keep me hydrated, and induce in the morning for a normal delivery not c- section. They are not concerned about my heart having problems because they say it's an electrical issue not a pumping issue with my heart. I don't know what that means, but hope they are right. When I bring up fainting during delivery (which is a symptom of mine) they say it won't happen. Anyways, I'm pretty nervous about my body being able to handle a delivery, and my doctors knowing what to do if a problem arises. I don't know if I am being unnecessarily nervous, or not. I really wish I had doctors with Pots experience, I'd feel so much more at ease. Anything you can say to help me feel better, or any advice you have please share!
  4. I'm still trying to figure out how to have good days. I find sometimes if I get up too early then I have a bad day. What is your morning routine? What do you do do get a good start on the day?
  5. I am 35 weeks pregnant, diagnosed with pots in January and have only seen my pcp and cardiologist up until now. They are sending me to a Maternal Fetal something something, who is not a Pots specialist but deals with all of the high risk pregnancies. Can you think of anything specific I should ask them about being pregnant and pots etc? I think I'm only going in once and I don't want to waste this apt.
  6. I am going in this week to meet with some Maternal Fetal Specialists for my pregnancy. Is there anything specific I should ask them about my Pots and pregnancy/delivery??
  7. I understand how you feel! I have been on bedrest for a couple of months and pretty much only leave my room to go to my dr. apt's. It's been difficult to say the least. I mostly communicate on the phone or computer. This forum has helped me not feel so alone in what I'm going through. Good luck to you.
  8. Hey, I hate bananas, I Loved that blog post you referred me to!! Thank you :-)
  9. Welcome pictureofhealth. I was also diagnosed in January of this year. My BP does not change at all, it's actually the only thing that is perfect, lol. Sorry I can't help with your other question, I'm not on any meds yet. Good luck. This forum has been extremely helpful to me.
  10. Thanks everyone! That's what I needed to know. This is actually my third child (6th pregnancy), first time with Pots. I have done Pilates before, and enjoyed it, so I'm glad to know I can do some more!
  11. Oh no! I'm sorry. Hope you're ok now. Thanks Blondie.
  12. Hi guys. So I am preparing for when I can get back on my feet after my baby is born. I'm expecting a slow recovery to life out of bed, and living with Pots. I know a gradual workout will be helpful, but don't know where to look to find one specifically for a Pots sufferer. Where should I look for an excersise program? A physical therapist? Should I find something online I can teach myself? Any suggestions would be appreciated. P.S. Only 4 weeks to go till baby is here. This has been SO hard, but we can't wait to meet him!
  13. Contrary to the others I look perfectly normal. Which makes people question this whole thing. The only thing I have been diagnosed with is Pots, maybe that's why. Good luck, hope you look and feel better soon.
  14. Thanks guys. I feel like there's not much info out there on this particular subject, and I appreciate your help :-)
  15. Gjensen, How beautiful that you can find so many good things from this. Thank you so much for sharing! I hope you all know how much sharing your personal experiences helps others, and how grateful we are.
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