castronovo112587

What exercise plans/programs have anyone tried? I am newly diagnosed with pots and have been reading all over that excercise can help with the symptoms and tachycardia. I know exercise is a big challenge. What type of exercises have been easiest to do and are most effective?

I am so glad I found this website! Unfortunately I'm not breast feeding as I had to stop because they were doing so much testing with radiation and dyes that get in breast milk and had me on medicine I couldn't breast feed with. I do have family support which is really great, I am so thankful for that. Have you tried any kind of exercise program? I am going to be getting a recumbent bike. I read that excerise training dramatically helps pots. I thinking of you as well

Thank you it is reassuring to hear that many people do improve with time.

Thank you. Yes I have looked over the site and for the time being I am drinking tons of water everyday and eating more salt. I haven't fainted but I've come close to it. I am going to buy an excercise bike as well as I've read that excercise training can help pots tremendously

I am 25 years old by the way

Hello all I am new to this forum and newly diagnosed as well. I am so glad I found this site as the last 5 months have been extremely difficult for me. I am 5 months post partum with my second child(they are seven years apart) and upon giving birth to my daughter my health has been a disaster ever since. It all started about 2 days post partum. I suddenly developed a terrible headache and felt like someone was standing on my chest. My blood pressure was taken and it was 181/132( I always had perfect blood pressure prior to all of this). So I had to go back to the hospital and get magnesium sulfate to lower my blood pressure and was put on propranolol to help as my blood pressure kept shooting up over the next week. I also had a never ending migraine for about 6 weeks and they tried to put me on topamax for it which I immediately stopped taking after a couple of days because it made me a completely different person. So my blood kept fluctuating to either sky high or too low 90/50 and all the while I was getting numerous other symptoms: palpitations, elevated heart rate, chronic pain everywhere, severe diarrhea every day, shortness of breath, constant dizziness and lightheaded ness, shooting chest pains, severe anxiety, even my pupils weren't dialating properly and all of this would be on a daily basis and I had no energy to do anything at all. I went to the emergency room numerous times as well as various doctors. Now here is where my story is unique, I was diagnosed with Carcinoid cancer in 2008 when they found a 3cm tumor in my appendix after appendectomy and it had started to spread onto the wall of the colon so I had an additional surgery where they took out the right half if my colon and 28 lymphnodes as well(and all was clear). Since then my tests for the cancer had been normal. So shoot to now when I seen my cancer doctor in July she strongly believed my cancer was back as carcinoid syndrome causes all the same symptoms I have been having as well. I had numerous tests done, pet scan picked up on activity near colon so I had colonoscopy and endoscopy done which was comletely normal and small bowel series was normal and bloodwork and urine specific to this cancer came back normal. Follow up ct scan showed noting out of ordinary but a homogeneous density in liver and spleen which was worrisome to me as years ago I was having lots of abdominal pain and the ct scans kept showing a "benign homogenous growth" in appendix and it turned out to be cancer. I made an appointment with Dr. Strosberg at Moffit Cancer Center in Tampa who specializes in Carcinoid Cancer only as it is a rare cancer and my cancer doctor was convinced it was back even thought my tests seemed ok because this cancer is extremely slow growing and it rakes years for tutors to get sizable. I went to Moffit in September with all of my scans and test results and described all of my symptoms over the last 3 months. He told me that he did not believe that my cancer was back but that it sounded like I had pots syndrome and that the way to diagnose it was a tilt table test. Thinking back now I had remembered in one if my hospital stays that my blood pressure would drop significantly when standing and after seeing the dr at moffit I started monitoring my heart rate sitting and standing and my heart rate would sometimes be in the 50s upon sitting down and as soon as I stand up it would go up to about 110 within 10 seconds. I am glad to finally know what is going on as I has been **** these last 5 months. All my tests from ekgs, echocardiogram, stress test and numerous blood panels have come back normal. Thyroid function and inflammation tests all normal. The only thing that I do suddenly have is allergies to everything! I am allergic to wheat, soy, milk, eggs and peanuts. I am also allergic to saw grass, ragweed, dogs, dustmites, and mold. I heard allergies is a common thing with dysautonomia. I also have excercise intolerance and was not able to work again up until about 2 weeks ago where I finally felt somewhat better and almost like myself again and then I caught this nasty cold and now my symptoms are back full force again. I have a lot more dizziness and severe headaches again as well as the itchy skin and swallowing difficulties and my energy is way down again although I had never fully recovered to my old self. What is most upsetting for me is my quality of life has greatly diminished. Before and during three quarters of my pregnancy I was an extremely active person with so much energy. I was able to work on my feet at a physical job for ten hours straight and then go out dancing all night with my friends and now just on Halloween taking my kids trick or treating I was winded and dizzy just walking to a few houses. It's also frustrating that almost every doctor knows nothing about this and no one I talk to as far as friends and family have either ( I hadn't before this) I feel like they don't understand just how terrible I am feeling. So I have a few questions. Is there anyone else who developed this due to pregnancy or child birth? Does anyone's symptoms get way worse around that time of the month? Mine do and now that I was just sick my blood pressure keeps dropping randomly again and all of the symptoms are worse again. I am trying to find a doctor near me while knows about this as I do not have a treatment plan yet. I am not on any medicines right now aside from amoxicillin because my cold turned into a bad sinus infection and I swear the Amox is making me worse as well. My blood pressure had finally stabilized at 2 months post partum( I might have had some sort if preeclampsia) now if it does fluctuate it goes too low. Any advice and tips would be greatly appreciated. Thank you guys I know this is a really long post.