bgregoire

I wanted to close up this thread, I just was at my endocrinologist to see if why I was in that hyperadrernegic state was caused by hormones. During his examination he didn't think it was anything hormonal but did diagnosis me with fibromyalgia. I am still learning about that but at least it is a diagnosis and hopefully I can move forward on some treatment to help. Thanks everyone for your advise and replies.

My heart rate if I get up an do anything will increase up to 120-130. I am wearing my HRM monitor I use for running and cycling today as a test today. I would normally pace my runs around 140-150bpm and have a resting heart rate of 70, so I feel like this is pretty abnormal for me.

Thank you all for your replies. I just had a CT scan of my chest abdomen and pelvis and there wasn't anything detected and nothing else to rule out pheo. My blood pressure has been 134/89 to 165/85 and yesterday was 145/93 and my resting heart rate is around 80-90bpm sitting here. I have been on several medications with little help. I drugs I started on were effexor, gabapentin and klonopin. They didn't seem to help at all and\or made things worse. Then I was on Propranolol and Buspar for month and a half and it did help with my blood pressure, but my major symptoms were not helped like my leg pain, shakiness, fatigue, headaches and light sensitivity. The Buspar also made me feel worse and when I was on Propranolol alone I didn't feel any better or really any different. Right now I am not taking anything and haven't been for about a month. I am located in eastern North Dakota, I am not sure if there would be anyone else other than at the Mayo clinic in Rochester closer or even close by. I am about a 6 hour drive from Rochester and so I was hoping they would be able to help me. I know that I am just going to have to wait for all though this but the worst thing about this is that I am unable to work. So just sitting here is pretty frustrating. Thanks all for your advice and support Ben

Thank you for your reply, I should have mentioned that a pheo was originally why he had ordered epinephrine tests for. As I understand it my levels are lower than what is needed to suspect pheo. They need 200% higher than the maximum of normal and I was only at 120%. I am going to double check with an endocrinologist though. He ordered the autonomics test to test for small fiber neuropathy and never mentioned POTS. Once pheo seemed to be ruled out I started looking on my own. They also didn't draw any of my blood for standing and laying down while on the tilt table. They only tested my BP and HR. I should mention that when I returned from the Mayo Clinic I went back to see my family doctor. He was unavailable during my original treatments because of his own medical leave and I had to deal with his associates while he is away. He mentioned that since I didn't have a history with those doctors and my only interactions with them seem to be that I am anxious that they tend to just say its anxiety. He is the only doctor that doesn't say it is anxiety other than the psychiatrist. Since my symptoms are pretty atypical for what he normally deals with he is recommending that I go back to Mayo and see a general Doctor there so I can then be routed to the correct specialty. He suggested also seeing my local infectious disease doctor but getting an appointment with him is over a month away. I cant imagine feeling like this for another month waiting to see another doctor. I had to do that to see the neurologist and that was pretty difficult. I may have no choice but as you all and understand, just waiting is pretty frustrating. Thank you for your reply

Thanks for the reply, I have not seen an immunologist or endocrinologist yet and I will do so. I am able to stand and walk, I just get really tired really fast and my shakiness makes me feel unstable while I walk. Thanks again.

Hello, I am new to the forum and I am trying to find out some answers for how I feel. For the past 3 months I have been feeling incredibly fatigued and no matter how much rest, I never feel better. Some other things I feel are tremulousness sensation. I can visibly see my hands shake and my teeth chatter all the time. I feel my trunk and legs shake but it doesn't appear to be visible. The sensation is a pulsing sensation. Like I am sitting on an old truck or tractor or driving on an gravel road. I have sensitivity to light and will get incredible headaches and eye fatigue if I am exposed to too much light and always hear a small ringing in my ears. I also am experiencing some leg pain. My legs always feel like they are burning. The only way I can describe it is the same feeling like after a long hard run or doing a set of squats, its the same burning sensation. They burn and shake all the time, They feel weak and fatigue really quickly. I also experience the same fatigue in my arms and back when I am holding something. I also have some tingling\numbness\burning sensation in my toes. My blood pressure is high since this started happening and this all seems to be worse when I am hot. This all started un July after I participated in a endurance cycling event, I rode 60 miles out of the 100 that was planned, after that I have not felt the same. Before this I was a pretty active person where I was working out and training for cycling and running events like marathons and century rides. After the ride this summer I have not felt the same and I am barely able to make dinner for my family without running out of gas. The light sensitivity is so bad that I can only look at my computer screen for a small period of time without getting a huge headache. I have been seeing Doctors about 2 weeks after the event when I could tell I was not recovering. They did a lot of tests from B12, thyroid as well as Lyme, Lupus and even Wilsons Disease and a brain MRI and everything all comes back as normal. The doctors I was seeing at the time all said it was anxiety and prescribed various types of antidepressants all which either made me feel worse or didn't seem to do anything. I then went to see a psychiatrist to help with the anxiety, but he said that he didn't think that I had any anxiety disorder and any anxiety I was experiencing was a symptom of an issue and he didn't see anything he could help me with. My doctor then then suggested I see a neurologist. I went to see a neurologist at the Mayo clinic, and we ran some tests. Everything including the autonomics test on the tilt table and he said was normal except for elevated norepinephines and normetanephrine in my urine. In his report he says I am in a hyperadrenegic state or have hyperadrenegic conditions and says its just anxiety. Also in his analysis he said the elevated norepinephines was of unknown significance. He said there was not an underlying neorlogicical disorder and suggested that this was just anxiety and I should see my local doctors and psychiatrist for further action. This leaves me at a dilemma as it seems that no doctor wants to help me with this. I am at this forum because when I search for the term hyperadrenegic state or conditions on the internet and I only see results for POTS and I am curious if anyone else had ran into this before. I do not feel like this is anxiety, other than me not feeling well I can not think of any stress or issue in my life that is new or different that would cause this for such a long time. So my questions is if its not POTS, what else could cause a hyperadrenegic state or elevated norepinephrine? Am I seeing the right type of doctor? When I look at the symptoms of Hyperadrenegic POTS it all seems to fit how I am feeling but I am just left with a lot of questions. Thanks Ben