Rachel
-
Posts
2,236 -
Joined
-
Last visited
Content Type
Profiles
Forums
Events
Resources
Physicians
Member Stories
Information Resources
Links
Status Updates posted by Rachel
-
"I have learned to kiss the wave that throws me against the Rock of Ages." Charles Haddon Spurgeon
-
It has been a wonderful 7 years! Thank you, DINET community, for all you have done for me! It has been a pleasure volunteering here. I will now be devoting much more time to rest. I will miss all of you and will be sure to check in now and then! Meanwhile, you can find mere here on facebook: https://www.facebook.com/CranberryTeaTime
-
"Therefore we do not lose heart, though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all." 2 Corinthians 4:16-17
-
My fatigue and muscle weakness continue to progress, and I continue to struggle with migraines. I am scaling back on my already substantially limited activity level. I am seeking to live well with dysautonomia and focusing on being a wife and a mother to the best of my ability. I won't be doing much volunteer work for DINET, but you will still find me online, whether on the DINET facebook page, the forum, or on my blog. You are always welcome to visit me in these places!
-
I have enjoyed my time serving as DINET president, and I am thankful for the various ways I have been able to volunteer for DINET over the years. It has been challenging, rewarding, and fun. Thank you, DINET, for allowing me this opportunity!
-
-
Thanks to a sweet friend, I now always have an extra spoon!
http://www.cranberryteatime.com/2013/11/an-extra-spoon_4.html -
30 Things About My Invisible Illness http://www.cranberryteatime.com/2013/09/30-things-2013.html
-
I have a new lift chair from a friend. It has been such a help to me! http://www.cranberryteatime.com/2012/12/a-special-friend-special-gift.html
-
After 6 months I am mostly unpacked and settled into our new place. Hopefully in another 6 months the unpacking will be complete. I'm slow, but I'm getting there.
-
We are moving from Georgia to Minnesota today. I will see you all when I have internet access again!
-
Love your new profile picture! Too fun!
-
awe... thanks rachel!!!! i think keeping humor in my life helps me deal with this disease.... as it seems to be my number one coping mechanism. I am a huge cut up when im feeling good...... and well, we all know that laughter is the best medicine!!!
thank you though... i do really like my pic... it is quite fun! i was making my daughters halloween costume (i love making homemade costumes and i am rather amazing at it!!!) so i was cutting up... -
I think you would be so much fun to hang out with in real life. If only you lived in Georgia!
What did you make for your children for costumes? I made costumes for my children this past fall too. My son was Wall-E, and my daughter was a ladybug. It was lots of work, but so much fun to see them dressed up.
-
-
I'm organizing a meet up for DINET members in the Atlanta area. Send me a message if you are interested! I'd like to meet some of you and chat in person!
-
It is National Chronic Invisible Illness Awareness Week!
-
Adelaide is sitting on the floor happily playing with my blood presure cuff. She has no idea that most children don't have real bp cuffs, pulseox meters, and stethoscopes to play with.
-
You know your temperature regulator is messed up when you have to sleep with a heating pad on your face. #notevenkidding
-
Happy 2011! Do you have any goals for this year?
-
My goal is to simplify. As my health continues to decline, I find that I have too much stuff that is no longer useful to me. In 2011 if it is not useful, beautiful, or sentimental, it goes away. I need a simpler, easier home life so that I can focus on what truly matters - my friends, my family, and my relationship with God.
-
Your health and the last three things are the only things that really matter.I pray for better days for you. God Bless.
-
