Jump to content

lifeandlifeonly

Members
  • Posts

    3
  • Joined

  • Last visited

Everything posted by lifeandlifeonly

  1. Also when I'm feeling quite symptomatic, I'm almost always experiencing very serious vasodilation. My whole body will be burning up, even if I feel "cold". It helps a lot to go outside in the cold (by 'cold' I mean below 50F, preferably 20-30F) .... outdoor temps above 70F are generally BAD for me.
  2. Often I'll feel okay when I wake up, but after I get out of bed my symptoms will gradually get worse and worse over the first two hours. Even when I just sit down at my desk with water, not doing any standing for two hours. I have no clue why it happens. Closer to bedtime the better I feel, generally speaking.
  3. Hi all I have chronic orthostatic intolerance and I seem highly intolerant to sodium and potassium, opposite of what most of you seem to experience. Took me years to pinpoint the potassium issue but sometimes even if I simply eat a couple bananas for example I will feel ill. Very uncomfortable burning sensations and pain on my hands, neck, head, face to go along with brain fog. Sometimes I seem too low in sodium and get an energy boost from a small amount, but it's much more easy for me to intake too much to where my standing tolerance is much lower, brain fog and headaches more prominent, shakier in general. These intolerances combined with food allergies means my diet tends to be very limited. Seemingly all processed food, even the expensive organic healthy brands, has a huge amount of sodium, far too much for me to handle. Background info: My blood pressure and heart rate are always in the normal range. My biggest intolerances are to eating too much, to heat, and to standing. It varies but generally standing in one place on a hot day is very draining and difficult. In a tilt table test I had a slow gradual dropoff, test stopped when near fainting around 8 minutes if I recall right, without trachycardia. I also have Chiari Malformation, had decompression surgery, supposedly good looking MRI. If anyone could give any guesses or insight as to my situation, it would be highly appreciated. I don't know what about my physiology is making me opposite to most on the salt/potassium issue, but finding out why could be very helpful. EDIT: I drink a lot of water, taking a guess of 2 to 4 quarts/liters of water a day.
×
×
  • Create New...