Bambamjr2013

Thank God my job asked for Voluntary layoff for 3 months. It's so hard dealing with this Syndrome and trying to keep up at work at the same time. God bless all that have to do it full time.

How are you doing post treatment? Prevpac made my POTS worse.

I've tried Amitriptyline 10 mill in the day and 25 at night. The 10 mill kinda had me tired during the day but the 25 mills helps me sleep really good. Sorry nobody answered your post. God bless

Thanks tcp. Appreciated much

I was diagnosed with POTS about 3 years ago and just have had a run of bad luck since. 8/12 I was feeling really ill with Stomach problems and was sent to a Gastrointestinal Physician and they discovered HPylori went on a Triple Antibiotic med and was cleared of this but still was feeling ill. I was sent to a Specialist in Louisville who diagnosed me with Spastic Colon and was given Amitriptyline and it truly didn't help me. About a month ago I had another Endoscopy and was diagnosed with SIBO. Went on two antibiotics and still don't feel well. I wakeup with Severe Headaches and Lower back pain. I sweat a lot at Night as well and have noticed Dark Spots like Age spots coming up all on my upper body. I have a lot of floaters as well. I'm just so scared and don't know what I should do. I have to see my GP tom. Does anyone have any advice that I can share with my GP. I'm just so ready to give up. Thanks and God Bless.

I notice I have a heat intolerance since having this Condition

Ive said the same thing as well. Headaches, lower back pain and neck pain as well. You probably have Family that Love you like I do. We have to remember them and keep pushing. If I could give you a hug I would. We will get thru this. Keep your head up and God Bless

I have the same issues. I was informed by an Eye physician that they are floaters as well. Dont let it worry you. I too went thru the same thing as you. Keep your head up. God bless.

Happens when I go to sleep. Its like you stop breathing and remember to and its like a gasp for air.Weird!!!!!

I work in a warehouse on my feet for 8 hours a day. Its a struggle but God gets me thru. Thank Goodness.

So sorry your going thru this. God bless ya and keep your head up.

I hear people raving about VSL3 probiotic as well. I know all to well about GI issues with having Hpylori and the treacherous PrevPac that they prescribed to me. Hope he gets well soon. God bless.

Same here, My Mother is Spanish, Asian and Black and My Father is Creole and Black. Hienz 57

Thanks alot Guys or Gals. I just want to ask a few questions pertaining to certain aspects of Ethnicity and this condition. I have never felt so bad in my Life. Glad I found this forum. This is so scary to me. I wont lie. God Bless

I was just wondering if there were any minorities with this Condition. My doctor wanted to know if I could find any others to share and discuss this with. Thanks.

Im sorry to hear this. Keep your head up and God Bless ya.

Do any of the Members suffer from this or is it only me???

This is interesting, does anyone know if there's any literature on gut issues in the more "hyper" forms of POTS? My doctor is now thinking that I do in fact have hyper POTS, and my digestive issues are quite different from this.

I managed to avoid the dreaded "IBS" being put on my medical record because they actually termed it "spastic colon" (which I find hilarious), but basically I've got the opposite of gastroparesis going on. Food goes right through me, so fast that my doctor actually thinks its causing some of my nutritional deficiencies. I can somewhat manage it by avoiding certain foods that I seem to have a minor allergy to, but I always wonder if this is typical of a certain subset of POTS patients.

Spastic Colon

Looking for a Dr or specialist if anyone can help. Thanks!!!

Thanks a lot I really appreciate your help. Glad I came to this forum.

Thanks Dave. I appreciate it. God bless

Thanks Sarah, I appreciate it. I'm just so discouraged with My GP. He has not taken the time to look at all my Diagnoses all together and it seems like I have to do all my resourcing myself. I think I will start with My Cardiologist Monday and setup a follow up. It's just scary feeling like your about to fallout all the time.

We'll in 2010 I was dealing with Dislocated ribs in my Upper back area Left side. Went to GP complaining of this issue. Was told it was a pulled muscle. We'll 8 months later I informed my GP again about my issue and finally did an MRI and discovered the slipped rib and was sent to Chiropracter and adjusted several times and that was over 25 visits and rib would not stay in place. We'll in 2011 I was in my Garage and I noticed my heart was beating out of my Chest when I stood up So I went to ER and was referred to A Cardiologist and was administered EKG, Monitors and Tilt Table test that confirmed my POTS. We'll I was then prescribed Bystolic 5 mg. And seemed to be doing alright with the Bystolic. So last summer I had a bad infected tooth and was prescribed Antibiotics for the Infection. After taking the Meds I started noticing my stomach would gurgle and I would get Headaches and Sweating. I informed my GP and he referred me to GI specialist and after a Upper EGD and Colonoscopy I was diagnosed with HPylori. Took the PrevPac for 14 days and took Stool Sample and Biopsy and was found to Eradicated. We'll I went to follow up visits and informed them that I still did not feel well and was sent to University of Louisville to see another Specialist and after him running several blood tests and me informing him of my ailments He diagnosed me with Spastic Colon and I'm so confused If it's POTS that can be the cause of all my issues? I wakeup with Crusty eyes and blurred vision and the veins in my eyes are becoming noticeable to I and My Wife. I wakeup with Headaches and just don't feel well. Should I request to see a Cardiologist and get more treatment for POTS? I'm just so confused and scared and want a better Quality of Life. I apologize for my rambling but I have never felt so bad in my Life. Any advice would be appreciated. Thanks

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