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Yes, they are cold as well but they may be due to the fact I am on a beta blocker. Unsure???

I can sympathize with you. I have just recently had a flare (same symptoms) except I was driving somewhere at the time. I never thought I would make it back home. I am really afraid I am going to get worse. I have had extreme anxiety and depression because I don't want to feel like I did last year at this time when I had a recurrance. Hang in there. Email me anytime. Diane

I can't seem to post without getting the quote passage-sorry. I too get tired of people coming up to me and saying, 'You look good" when I actually feel absolutely horrible. That is why it is nice to have posts like this so discussion isn't so difficult. lso, my partner of 9 years is very healthy and it is hard to be around her sometimes. I really hate to say that, but I am jealous that she can get up and go to work every day and live a "normal" healthy life. I have been disabled since 1998, and had to leave a job I enjoyed and worked 12+ hours daily!! My life is changed and somehow I have to learn to live with it. Sometimes I just try to find the smallest glimmer of hope even for just one moment to get me through the day. My symptoms are in full force right now and it is hard. I can't even get out to see a movie. I am grateful to have today and people like you to get me through. Keep posting and take care. Diane

Angela- I have been in your situation. Life is turned upside down with illnesses such as ours. To be fair to yourself I would be honest with your situation to your friend. It is nothing to be ashamed about and in the long run you would feel better about yourself. Diane <{POST_SNAPBACK}>

Angela- I have been in your situation. Life is turned upside down with illnesses such as ours. To be fair to yourself I would be honest with your situation to your friend. It is nothing to be ashamed about and in the long run you would feel better about yourself. Diane

Thanks Morgan- I was actually wondering if they are increasing my symptoms too. Take Care

I get severe tachycardia so I haven't drank in 5 years. Why make your symptoms worse? They are bad enough already. Diane

Morgan- Do you have any other problems besides OI? Also, why did the other 2 hospitals/clinics reject you? Are you on any meds? I am sorry you are house bound. I am too and it really is no fun. Email me anytime.

I have been on antidepressants for years to help with my depression related to this illness. Anyone else on antidepressants that seem to help? I have completely lost my appetite which happens from time to time. I am unsure if it is related to my depression, meds, or dysautonomia? I am afraid to stop my antidepressant for fear of worsening depression and bad withdrawal side effects since I already feel horrible. I am currently taking Cymbalta 30mg at night. I was switched from Prozac. Anyone else???

Does anyone here with dysautonomia experience hot hands??? Whenever I get a flare I experience this...weird??

I am on a beta blocker (atenol) and I cannot live without it. If I do not take it my HR is out of control and I end up in the emergency room. Atenolol is relatively safe too! Diane

My body temperature is constantly low although I have symptoms of a fever (chills, sweats, etc...) My temp. ranges from 95-97 degrees.

I went through the same treatment from doctors you are receiving. I was treated like my illness was all "in my head" and that the root cause was anxiety. keep the faith and find a good doctor that specializes in thsi condition. Thi site is also nice to speak with other sufferers who can relate great information. best of luck- Diane

Interesting. My heart rate usually towards the evening when my atenolol starts to wear off goes up at least 30bpm or more if I am doing something or upon standing from a crouched position.

Gayle- What symptoms do you experience? How were you diagnosed? Do your symptoms come and go???