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walstib9

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  1. My brain fog and cog impairments have been so bad since I was a little child that now......I think it's just time to give up hope. Yeah yeah.....always hope? My vally of darkness never gets bright no matter what I try. i KNOW that that is predominebtly a result of being around bad people but they were people we were supposed to be able to trust. I am sorry but I just can't keep trying only to get hit again.
  2. I am trying this. Not helping cognitive though. Will write more later.
  3. I keep my notes to self and meds RIGHT where I can see them where I know I always look. Kitchen especially. Not by my bills. They bite!
  4. I had to go to a couple stores today and I SO LOVE IT when numbers on price tags move by themselves round and round! I try to access from the outside as well to get in and out as fast as possible but it's funnee cause the POTS can hold you captive sometimes and make you belive that you can do 1 more store.
  5. I would do just about anything to find a med that would help THIS symptom. NOTHING helps this one. Florinef did UNTIL I was put in a real real yukky enviro. with a yukky person for a few wks. and.....believe it or not......the stress of that enviro overode the Florinef and it never worked again. NICE ):
  6. ((GUVNA))) you should post this on the cog page. Hi Jersey Girl! Are you on Springsteens page as well !!!! (:
  7. ditto ditto ditto ditto ditto..........ALL my life those "detached from your surroundings/audio "far away" feelings. AWEFUL when upright AND in these places. that has gone on since my childhood. Is worse than ever now as I am having spiritual amd emotional stress. I am GLAD in a weird way to see posts about this finally. People say they don't feel they have cognitive impairment but that's exactly what this is. That is the worse area of POTS for me. I have had zillions oftimes hwere Iknew people could see/feel that I was a wreck. Sometimes I think they can as my/our pupils dialate at these times and we give off a vibration. Feeling on the "outside/not fitting in." See the post I did aboput it on the cog page. It's a long one. Thanks so much for sharing. THIS symptom is by far my worst and most constant. Sitting as well now. Feel free to e-mail me and talk more about it. Surfing the site can be difficult at times cause my computer is old and ancient. Again--THANK YOU!!!
  8. Hi all,Could someone tell me Dr. Grubbs office contact info. An e-mail would be quicker for me to receive. Thanks and many blessing to all on this dysoauote-bus!!!!!
  9. THIS WAs/IS me. Not so much the social stuff but the not 'jumpin' in. Note how it says we drew strength others don't have to keep a tryin'.......... Some people have told me lately (other dysoautonomias!) that they have never had cog problems. I beg to differ ! (said in jest and respect) amazing article. Depression and Anxiety in Adolescent CFS, FM and OI "adolescent girls with CFS showed strengths such as adequate self-esteem and scholastic and social abilities, and weaknesses such as low competence in adolescent-specific tasks and internalizing distress, which may partly be explained by syndrome-specific somatic complaints." ~ van Middendorp et al Anxiety and depression may be experienced as a result of the disbelief, hurtful comments, loss of socialization time and learning difficulties faced by kids with chronic illnesses such as Chronic Fatigue Syndrome (CFS), Fibromyalgia (FM), and Orthostatic Intolerance (OI). Losing the ability to participate in activities that helped define an adolescent's self-image, seeing friends drift away, being teased by disbelieving peers, and facing the possibility that medical treatments will not help can be very difficult. Adolescents may be frustrated by their inability to push through their symptoms and achieve in the same ways they did when they were healthy. They may be deeply upset by the possibility that they may not recover. There are many issues for them to face and come to terms with prior to and immediately after a diagnosis. It is also thought that depression and anxiety may occur as part of the neuroendocrine changes that are part of CFS and FM. For example, anxiety may be triggered by the surges of catecholamines that occur during presyncope and orthostatic tachycardia, common experiences for youth with CFS and forms of orthostatic intolerance such as neurally mediated hypotension (NMH) or postural orthostatic tachycardia syndrome (POTS). It is often possible to differentiate between CFS, FM, and major depressive disorder. A comparison of adolescents with CFS and adolescents with depression finds higher self-esteem and feelings of self-efficacy in those with CFS. In addition, adolescent CFS subjects have less depressive symptoms and antisocial behavior than do their peers with major depression (Carter, 1995; Carter, 1996). Characteristics such as life changes, cognitive difficulties, negative self-attributions, social relationship disruption, and somatic symptom presentation may also be used to differentiate between idiopathic chronic fatigue (ICF), depression, and controls (Carter, 1996). The area of overlap between adolescent CFS and adolescent depression that has received the most attention is the internalization of distress. Three studies of adolescent girls with CFS (Pelcovitz, 1995; Carter, 1999; van Middendorp, 2001) and one study of adolescents with several months of idiopathic chronic fatigue (Carter, 1995) reported high scores on measures of internalizing. The evidence of increased rates of depression in adolescent ICF (Smith, 1991; Carter, 1995b) and CFS (Brace, 2000; E Garralda, 1999), and of anxiety in CFS (E Garralda, 1999), has added to interest in this area. However, researchers continue to report that adolescents with CFS can be differentiated from those with major depression. Despite the challenges they face, adolescents with CFS have psychological strengths that they draw upon. Normal achievement motivation, no unusual fear of failure, high internal locus of control, and the use of palliative reaction patterns are reported in adolescent CFS (van Middendorp, 2001). Normal adjustment for psychosocial self-esteem and social abilities is is also found in adolescent girls with CFS (van Middendorp, 2001; E Garralda, 1999). Total competence is higher in CFS than in adolescent juvenile rheumatoid arthritis (Brace, 2000). Syndrome-specific somatic complains and the impact of the loss of socialization time may help explain low perceived competence in specific adolescent domains for girls with CFS, such as athletics and romance (van Middendorp, 2001). The questions raised by comparing adolescent depression, CFS, and juvenile rheumatoid arthritis are explored in this interview with Bryan Carter, PhD.
  10. God-THIS WAS/IS me!!!! Not so much the social but the not 'jumping in.' Note though that we had strength that we drew on IN SPITE OF and kept a tryin'................. Depression and Anxiety in Adolescent CFS, FM and OI "adolescent girls with CFS showed strengths such as adequate self-esteem and scholastic and social abilities, and weaknesses such as low competence in adolescent-specific tasks and internalizing distress, which may partly be explained by syndrome-specific somatic complaints." ~ van Middendorp et al Anxiety and depression may be experienced as a result of the disbelief, hurtful comments, loss of socialization time and learning difficulties faced by kids with chronic illnesses such as Chronic Fatigue Syndrome (CFS), Fibromyalgia (FM), and Orthostatic Intolerance (OI). Losing the ability to participate in activities that helped define an adolescent's self-image, seeing friends drift away, being teased by disbelieving peers, and facing the possibility that medical treatments will not help can be very difficult. Adolescents may be frustrated by their inability to push through their symptoms and achieve in the same ways they did when they were healthy. They may be deeply upset by the possibility that they may not recover. There are many issues for them to face and come to terms with prior to and immediately after a diagnosis. It is also thought that depression and anxiety may occur as part of the neuroendocrine changes that are part of CFS and FM. For example, anxiety may be triggered by the surges of catecholamines that occur during presyncope and orthostatic tachycardia, common experiences for youth with CFS and forms of orthostatic intolerance such as neurally mediated hypotension (NMH) or postural orthostatic tachycardia syndrome (POTS). It is often possible to differentiate between CFS, FM, and major depressive disorder. A comparison of adolescents with CFS and adolescents with depression finds higher self-esteem and feelings of self-efficacy in those with CFS. In addition, adolescent CFS subjects have less depressive symptoms and antisocial behavior than do their peers with major depression (Carter, 1995; Carter, 1996). Characteristics such as life changes, cognitive difficulties, negative self-attributions, social relationship disruption, and somatic symptom presentation may also be used to differentiate between idiopathic chronic fatigue (ICF), depression, and controls (Carter, 1996). The area of overlap between adolescent CFS and adolescent depression that has received the most attention is the internalization of distress. Three studies of adolescent girls with CFS (Pelcovitz, 1995; Carter, 1999; van Middendorp, 2001) and one study of adolescents with several months of idiopathic chronic fatigue (Carter, 1995) reported high scores on measures of internalizing. The evidence of increased rates of depression in adolescent ICF (Smith, 1991; Carter, 1995b) and CFS (Brace, 2000; E Garralda, 1999), and of anxiety in CFS (E Garralda, 1999), has added to interest in this area. However, researchers continue to report that adolescents with CFS can be differentiated from those with major depression. Despite the challenges they face, adolescents with CFS have psychological strengths that they draw upon. Normal achievement motivation, no unusual fear of failure, high internal locus of control, and the use of palliative reaction patterns are reported in adolescent CFS (van Middendorp, 2001). Normal adjustment for psychosocial self-esteem and social abilities is is also found in adolescent girls with CFS (van Middendorp, 2001; E Garralda, 1999). Total competence is higher in CFS than in adolescent juvenile rheumatoid arthritis (Brace, 2000). Syndrome-specific somatic complains and the impact of the loss of socialization time may help explain low perceived competence in specific adolescent domains for girls with CFS, such as athletics and romance (van Middendorp, 2001). The questions raised by comparing adolescent depression, CFS, and juvenile rheumatoid arthritis are explored in this interview with Bryan Carter, PhD.
  11. THIS WAS ME! Not so much the social but the NOT trying to participate and NOTE that no matter what....we pocessed others strengths to keep a truckin'. Depression and Anxiety in Adolescent CFS, FM and OI "adolescent girls with CFS showed strengths such as adequate self-esteem and scholastic and social abilities, and weaknesses such as low competence in adolescent-specific tasks and internalizing distress, which may partly be explained by syndrome-specific somatic complaints." ~ van Middendorp et al Anxiety and depression may be experienced as a result of the disbelief, hurtful comments, loss of socialization time and learning difficulties faced by kids with chronic illnesses such as Chronic Fatigue Syndrome (CFS), Fibromyalgia (FM), and Orthostatic Intolerance (OI). Losing the ability to participate in activities that helped define an adolescent's self-image, seeing friends drift away, being teased by disbelieving peers, and facing the possibility that medical treatments will not help can be very difficult. Adolescents may be frustrated by their inability to push through their symptoms and achieve in the same ways they did when they were healthy. They may be deeply upset by the possibility that they may not recover. There are many issues for them to face and come to terms with prior to and immediately after a diagnosis. It is also thought that depression and anxiety may occur as part of the neuroendocrine changes that are part of CFS and FM. For example, anxiety may be triggered by the surges of catecholamines that occur during presyncope and orthostatic tachycardia, common experiences for youth with CFS and forms of orthostatic intolerance such as neurally mediated hypotension (NMH) or postural orthostatic tachycardia syndrome (POTS). It is often possible to differentiate between CFS, FM, and major depressive disorder. A comparison of adolescents with CFS and adolescents with depression finds higher self-esteem and feelings of self-efficacy in those with CFS. In addition, adolescent CFS subjects have less depressive symptoms and antisocial behavior than do their peers with major depression (Carter, 1995; Carter, 1996). Characteristics such as life changes, cognitive difficulties, negative self-attributions, social relationship disruption, and somatic symptom presentation may also be used to differentiate between idiopathic chronic fatigue (ICF), depression, and controls (Carter, 1996). The area of overlap between adolescent CFS and adolescent depression that has received the most attention is the internalization of distress. Three studies of adolescent girls with CFS (Pelcovitz, 1995; Carter, 1999; van Middendorp, 2001) and one study of adolescents with several months of idiopathic chronic fatigue (Carter, 1995) reported high scores on measures of internalizing. The evidence of increased rates of depression in adolescent ICF (Smith, 1991; Carter, 1995b) and CFS (Brace, 2000; E Garralda, 1999), and of anxiety in CFS (E Garralda, 1999), has added to interest in this area. However, researchers continue to report that adolescents with CFS can be differentiated from those with major depression. Despite the challenges they face, adolescents with CFS have psychological strengths that they draw upon. Normal achievement motivation, no unusual fear of failure, high internal locus of control, and the use of palliative reaction patterns are reported in adolescent CFS (van Middendorp, 2001). Normal adjustment for psychosocial self-esteem and social abilities is is also found in adolescent girls with CFS (van Middendorp, 2001; E Garralda, 1999). Total competence is higher in CFS than in adolescent juvenile rheumatoid arthritis (Brace, 2000). Syndrome-specific somatic complains and the impact of the loss of socialization time may help explain low perceived competence in specific adolescent domains for girls with CFS, such as athletics and romance (van Middendorp, 2001). The questions raised by comparing adolescent depression, CFS, and juvenile rheumatoid arthritis are explored in this interview with Bryan Carter, PhD.
  12. I hope that by "tests" docs are doing X-rays as well. And a CT if insurance will cover.
  13. tried neuron. for a few yrs for sleep then it backfired big!!!! Postal almost! (: I am about to see if I can copy/paste something imp in the REM and COG pages. Here goes. Hi ((((BWolf)))) POTS bad bad right now.
  14. Was gonna ask how everyone was but looks like I was the last one here. Looks like my cog syuff is all alone as well. Been talking a bit with someone who feels they are 'just existing.' That's what it's like now. All the fire in me going out.
  15. When I-I-I-I KNEW my whole life drugs/meds made me worse But BEFORE my POTS/NMH was diagnosed......lexapro was tried, (along with everything else known to man) it made me bad bad depresed and suicidal. I knew right away it was that. Isn't this fun? eee-gads!
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