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Melach

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  1. Nina, Have an AMAZING trip!!! We'll miss you . Merry Christmas and happy holidays to everyone else! By the way, is it snowing over there? Ayelet
  2. Katherine, Happy anniversary! Wishing a wonderful and pots-free year! Thanks for all your contributions! Mazel Tov , Ayelet
  3. Amy, It's very good that you got the endicronology appointment, maybe they'll really be able to help you. I've also had a lot of issues with weight loss, so let us know if they find anything interesting. Regardless, it's always important to check everything out. By the way, this shrink sounds like she's reallly doing her job, which is great! And of course your Washinton D.C. rendevouz sounds freezing, albeit fun. B'Ahavah, Ayelet
  4. Sue, I don't believe that there is an underlying cause for my pots, at least not one that doctors can find. I suppose that other disorders or diseases could cause the same symptoms if left untreated, but that's not really pots per se. Obviously I wish (as I'm sure everyone else does), that pots could easily be corrected. Maybe I'll ask my doctor some questions about this at my next appointment . Anyway, good luck! B'Ahavah, Ayelet
  5. Ernie, I may be mistaken, but I thought that orthostatic syncope is the kind of fainting people with dysautonomia experience. Also, there seem to be a lot of links between chronic fatigue/fibromyalgia and dysautonomia. Maybe this is one of them. I wish you the best of luck in your upcoming tests, and hope that they'll soon be able to give you a treatment for this. B'Ahavah, Ayelet
  6. None of you have to answer this if it's a really stupid question, and the first word you learn in kindergarten, and what most dinner disscussions are on...but what is tempurpedic? Sorry, just a little confused Ayelet
  7. I was only on a beta blocker for a short amount of time because it actually made my dizziness worse. However, I also experienced the sun sensitivity. Here in Israel the sun is also a problem, and in fact just the other month I had the same issue with an antibiotic. Everyone be careful!
  8. Dr. Grubb, Wishing you a speedy recovery, and the best of health in the future. It must be hard to suddenly be the patient! Refuah Shlema! all the way from Israel, Ayelet
  9. Baruch dayan emet. Oh, Morgan I am so terribly sorry for your loss. I'm sure Gene was a wonderful person, and he is lucky to have gone peacefully. This is all just so tragic, and you are very strong. Everyone is here to be a comfort for you during this time, so please don't hesitate to ask. All of my love and condolenscense. Ayelet
  10. Tearose, I second what everyone has already told you, and send wishes of a speedy recovery your way. Have some chicken soup! Ayelet
  11. Nina, thanks for the easy to read explanation. I'm sure it'll help me understand future posts too because, unfortunately, so many people here seem to have similar problems. Again, I'm so sorry that you are in this much pain. Ayelet
  12. Merrill, Oy! I'm sure you'll be fine, but your mishap just made me laugh. GOOD LUCK tomorrow with your MRI! They aren't fun, but I'm sure you'll be relieved to have it over with. I'll be thinking of you tomorrow! (And will of course be telepathically cheering you on ) Actually, it'll probably be night here so I'll just be dreaming those cheers... B'Ahavah, Ayelet (I still can't even fathom having a doctors appt on a Saturday...weird!)
  13. Mindylee, How beautiful! This is really great. If you don't mind, I'd like to email this to a friend of mine stuck at home because of premature contractions. I'm sure it will really make her think, just like I did. Thanks to you and your dad. Ayelet
  14. What a great article! Maybe if the writer gets enough pressure from potsys, she/the newspaper will be motivated enough to write more on the topic. Thank you so much for sharing this! Ayelet
  15. Nina, Unfortunately, I don't understand exactly what you're saying medically. Whether it's because of my lack of english or medical terminology, I'm not sure. However, I very much hope that you're not in too much pain and that the test goes well. I'm crossing my fingers for you that the physical therapy and pain management are succesful and you soon begin to feel as healthy as you possibly can. It sounds like you have a wonderful doctor, so I'm confident that you're in the very best of hands to help you with this. Keep us updated, and if I don't have the chance to say it again before you leave, have an absolutely AMAZING holiday. (Ok, I'm still a little jealous ) B'Ahavah, Ayelet
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