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Kim Culver

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  1. Hi...I'm Kim. I am new to this forum (as of today...yay me!). I have a 12 year old son that was diagnosed with POTS about 1.5 months ago. I have so many questions for all of you but this thread popped out at me because we were talking about starting saline for him. "we" being my husband and I. We have yet to find a dr in our state that will treat POTS in a child. We live in SW Florida and he was diagnosed at Mayo in MN. We couldn't even go to Mayo in Jacksonville because they don't start treating until kids are 16 years old. We do have an awesome Pediatrician so that does help. Anyway, I'm rambling.... Can anyone tell me what the benefits of the IV saline infusions are? Does it help if you are already at an adequate fluid intake? My son spends almost all day, everyday in bed or in his wheelchair. He has not improved at all with just the fluids, salt, exercise, rest and vitamins. Looking for an alternative to harsher medications because he has other medical issues too. Any info would be greatly appreciated! Thanks :-)
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