SLynn

I haven't posted in a long time. I am 21 years old and was diagnosed with Dysautonomia when I was 17 years old. I was wondering if any one you ladies have had problems taking birth control pills. I started taking them and have a lot of old symptoms flare up. I don't know if they are the cause or not. If you have had any problems let me know.

I also bruise a lot too! I have checked with my doctor and he ran several tests to make sure nothing else was going on. We never found a reason why I bruise but I still find them on me weekly!

It is on the Doctor list on this web page too

There is the Mitral Valve Prolapse and Autonomic Disorder Center in Birmingham Alabama if that is closer for you.

This also happens to me too. It has been occuring for about three years. My body temp. is usally low 97-97.5 and rises to about 99-99.5. I have posted before that it is hard for me to keep my body temperature normal. It goes from one extreme to another! I'm either having chills or feeling like i'm having hot flashes!

Yes!! I experience dizziness every day! It is one of the hardest things that I struggle with. I just have to lie down for a while and hope it subsides. The dizziness has been really bad for the past year and I know how you feel.

Thank you for your imput. I always like to get other opinions so I know i'm not the only one who has to suffer through these weird symptoms. I have read that many people experience this but when I talk to my doctor about it he acts like i'm crazy!

I was wondering if anyone has a hard time with staying cold. I constantly stay cold and it takes a long time before I can warm up. If anyone has any advice, please let me know!

Yes!! If I just raise my head my heart rate increases and I start having palpatations too!

Dysautonomia has been a pretty common problem in my family for years. My twin sister has been treated and my father has also been diagnosed with dysautonomia. I believe there is a strong genetic connection!

I have a terrible time with waking up at night and being extremely nauseous. It happens about once a week. Does anyone else experience that?

Yes, I have tried all of the simple things. I usually would just get dizzy when I stood for a long time. The dizziness has just started to get worse the past few weeks. Thank you for your replies!

Lately, I have been just sitting at the computer or television and noticed that I get really dizzy while just sitting there. It just started happening so I haven't gotten to go visit my doctor. I was wondering if anyone else has ever had this happen?

Hi, My heart rate is also elevated when I wake up in the morning. My HR is about 100 then and when I stand up it jumps to about 160 . Anytime I am still for a long time I have that problem. I also benefit from drinking a lot of fluids like the others said. I also wake up about 30 minutes earlier in the morning to get my body going.

I have the same unusual pain in my neck, back, and scalp. I have been having the problems since I was 17 years old and now I am 20. After going to numerous doctors, they related my electric like pain and head related pain to fibromyalgia. It's still hard to believe what the actual cause of it is for me. I have a twin sister who has not been diagnosed with POTS with the same symptom! It made me feel somewhat better to know someone else has these crazy symptoms I have.