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Faintinggoat

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Everything posted by Faintinggoat

  1. Faintinggoat
    Maybe some of the testing can be pursued by a neurologist or your cardiologist in Montana. That is quite a hike a way (now I feel bad for complaining about my several hour drive lol!)
  2. Faintinggoat

    bad symptom day. nap time.

    1. Show previous comments  5 more
    2. Faintinggoat

      Faintinggoat

      the hospital can report if they think there is reason to report, at least here they can. So they reported the syncope after the second time I was admitted to the DMV. Honestly, it isn't a big deal because I wouldn't feel safe driving anyway.

    3. KareBear

      KareBear

      I dont drive either but its nice having incase I have to for an emergency. I guess here they dont report it.

    4. Faintinggoat

      Faintinggoat

      I think a lot of dr's don't report because its really close to that line of break confidentiality laws.

  3. Faintinggoat
    I have hypovolemic POTS, which just means that my blood volume and plasma decrease with postural changes. A lot of people on here have hyper POTS. For my subtype, I had the hemodynamic tilt test, which basically just looks at what your blood is doing when you are in different positions. With me, when I sit up/stand my blood volume and plasma volume go down ~50%, and pools in my legs and abdomen. For this subtype the treatment doesn't really change much. Drink tons of water, lots of salt intake, and meds to treat symptoms (e.g., Beta blockers for tachycardia, etc.) I know how you feel about the autonomic clinics, I had to drive a few hours to get to the nearest autonomic clinic and have all these tests done. Best Wishes, Fainting Goat
  4. Faintinggoat
    I started Coreg not too long ago, and I didn't have the sight loss side effect, but I did have A LOT of side effects from it. More tired than usual, headaches, increase dizziness, etc. Sorry that you are having such a bad reaction to the Propranalol, but I do hop that the side effects decrease and that you feel better soon! Best Wishes, Fainting Goat
  5. Faintinggoat
    I have been thinking about working with my doctor on a exercise plan, and seeing stories like yours and having success with exercises encourages me. I had ulcers and had an endo when I was a teenager, I was under sedation. Like Medicgirl I was completely fine. I wasn't having all the POTS issues then, but I had (and still have) moderate asthma. I did fine, they just kept me in the hospital for a little longer than usual to watch me. Best wishes, I hope that they are able to find out what's going on and take care of it.
  6. Faintinggoat
    Welcome to the forum! Wishing you well wishes on your POTS journey!
  7. Faintinggoat
    @medicgirl, I never thought about the detachable shower head, that's a really good idea
  8. Faintinggoat

    Balancing POTS and college... POTS really doesn't like to share the spotlight.

    1. Show previous comments  3 more
    2. Faintinggoat

      Faintinggoat

      Awh thanks, you're a pretty tough cookie too! It takes a lot to cope with chronic health problems :). I am studying Psychology with a focus on child development. I would love to work with kids in a health care setting but just taking one day at a time right now

    3. KareBear

      KareBear

      That's exciting! I'm impressed that you are doing all this and have such great goals despite your health. You will make it, you have the drive and motivation.

    4. Faintinggoat

      Faintinggoat

      its actually a good distraction from the health. Thanks for the support! I can definitely use it at times!

  9. Faintinggoat
    Yeah, like hope said, this is pretty typical. I'm like medicgirl, I have to sit in the shower, and have to do lukewarm water as well since I've developed the POTS. My specialist told me that I couldn't shower, or take a bath when I saw him the first time. I asked him what I was suppose to do and he explained to me that when syncope is a symptom if you're standing there is too great a risk of falling in the shower, and too great a risk of drowning in the bath. Comforting first appointment lol.
  10. Faintinggoat
    I'm like Psalms, I wear the compression hose and the abdominal binder. The binder also helps me a lot with eating as well. My specialist did tell me what Psalms was saying, that it is better to put it on before you get out of bed and taking it off after I have laid down in bed for the evening. He also told me that the thigh high ones are more effective than the knee high ones (though to me they are significantly more uncomfortable).
  11. Faintinggoat
    Yeah I definitely get this basically anything from actually working out to just doing the stairs to my apartment (stairs are the worst!) If I don't feel bad immediately after, I generally do start to get dizzy after about 10-15 minutes. I don't really have an exercise plan but reconditioning is suppose to be really good for people with POTS, so I think maybe it might not be a bad idea to keep trying in small amounts.
  12. Faintinggoat
    I am happy to hear that you found something that helps you! Best wishes, Fainting Goat
  13. Faintinggoat
    Hopefully soon your body will realize it can finally sleep! Best wishes again tonight!
  14. Faintinggoat
    I cant say that this is something that I've experienced, but wanted to just drop a comment and say I hope that you are able to get a good night sleep tonight!! Well Wishes, Fainting Goat
  15. Faintinggoat

    sometimes people annoy me. I have a friend that is trying to draw me into one of these vitamin supplements that are suppose to cure all. Her appeal to me was to tell me that the body is suppose to be self regulating and heal itself, not dependent on medicine. I'm glad that it helps her, but sometimes, for some reason, the body fails to regulate itself and needs a little push.

    1. KareBear

      KareBear

      I agree with you, one of my grandmas is the same way about her herbs but the funny thing is her health is horrible so yeah herbs are great lol. She also thinks everyone has a thyroid problem and if you get a cold....its thyroid. Diarrhea? Thyroid lol. Some people just dont get it. Natural remedies are nice for some things but western medicine is needed too! Sorry she is putting added stress on you.

    2. Faintinggoat

      Faintinggoat

      there are so many people like that. Your story made me laugh though! Though it would be nice if everything were as easy as the thyroid! It's no worries, she isn't really adding that much stress, its just more frustrating than anything. If natural remedies work, great. But that doesn't mean it will work for everyone. lol, If I could take something like a natural herb and stop passing out, I'd be on that bandwagon so quick!

    3. KareBear

      KareBear

      Glad my story made you smile :)

      You know you are doing the right thing for you and thats what matters.

  16. Faintinggoat
    I think that this is one that varies from person to person. I did not have a spinal tap, thank god. But have had structural MRIs of neck/spine and brain with and without contrast, as well as CT scans and mine were fairly normal.
  17. Faintinggoat
    Hey Rosey, I also wanted to say I'm sorry its a bad day for, as well! I hope that you feel better soon! Fainting Goat
  18. Faintinggoat
    thnaks everyone for the well wishes. not really feeling any better today, going to get a hold of dr tomorrow. I am kind of discouraged that the Coreg isn't helping
  19. Faintinggoat
    Also, to go on what Hope said, churches will sometimes have people that do stuff like that as well if your insurances doesn't cover something like that.
  20. Faintinggoat
    Sarah, Thanks for the warm wishes. I normally have both pre-syncope and syncopal episodes, but I'm not normally pre-syncopal all day long, and usually only faint 3-4 times a week. So twice in one day is scary. I have not called my doctor yet, as she is not one of the physicians in the clinic on the weekends, but will be in touch with her tomorrow about this. Megan
  21. Faintinggoat
    This is a really good, and relevant question to many people I believe. I know that I have struggled with isolation the past few months. Social media, and pets help to some extent, but it just isn't quite the same as having quality time with friends. I have a few friends who are willing to come visit me at my place, and just hang out watching TV, playing games, etc. Is there anyone in your life that you wouldn't mind asking to come over and hang out with you? I know that this can be hard. I know sometimes with me it's hard for me to ask someone to come visit because I feel bad that I can't do a lot of things with them. Other times, I feel very lonely but just don't feel up to asking someone to visit (sometimes that feels like it's more exhausting then going out and doing something), but that also perpetuates that feeling of loneliness. Lots of love, Fainting Goat
  22. Faintinggoat
    not doing well today. I'm not sure if it's the coreg causing it (I've been on it for about a week, so its likely starting to kick in), or not. I have been so exhausted, fainted twice today, was apparently unconscious longer than usual both times, had longer recovery times, and have been apparently presyncopal (spacey) most of the day. Well wishes are much appreciated. Fainting Goat
  23. Faintinggoat
    I think this is pretty common unfortunately. A lot of big places like Cleveland, and Mayo know that a lot of people come to them from out of town. It was explained to me that because of that, they like to schedule all the testing as close together as possible. Its nice financially, but when your sick, its super hard to go through that much testing without being allowed to eat or drink. The last time I was in Cleveland, I was there from 8-4 and wasn't allowed to eat or drink (other than to take my medicine). Hope that things work out well for you! Fainting Goat
  24. Faintinggoat
    Yeah periods definitely have an effect on POTS. As Naomi mentioned, you can search google for information on POTS and Mestruation. This is also something that I have seen posted on the forum before: http://forums.dinet.org/index.php?/topic/24507-ladies/?hl=period#entry229141 http://forums.dinet.org/index.php?/topic/24474-advice-from-women-please/?hl=period Fainting Goat
  25. Faintinggoat
    Like Corina, I just wanted to say that I hope that this med helps you a lot! I, also, have not been on the medicine, but best wishes! Fainting Goat
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