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chanisco

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Everything posted by chanisco

  1. Thanks you both for your quick answers! I really appreciate it. I don't have a cardio yet. Right now my primary is doing these tests - mostly to humor me. She knows I'm a "reasearcher" and need to know these things (aka I'm nuts). But I have had a lot of problems with my health, especially since 1993, and the doctors often just put the crazy label on me. Of course since the crazy labels a number of health issues HAVE been diagnosed including autoimmune thyroid, PCOS, endometriosis, lupus antobodies, sjogren's syndrome antibodies, insulin resistance, celiac, and leaky gut syndrome. It makes me so mad. One doc told me I should eat better and exercize more (and maybe see a psychologist because I'm probably depressed). Well, that's kind of tough when your blood sugar is 40 and you're anemic and hypothyroid! Plus I didn't know I had celiac then, and I wasn't depressed, just sick! I guess after the echo I'll maybe ask for the tilt table test, or at least to get referred to a cardiologist. I see there is one on the list here in NH. The office is kind of far from me, but would be worth it rather than wasting my time with more clueless doctors. I'm lucky in that I don't need an official referral to see a specialist with my insurance. I just need to set up an appointment and go. Gena, thanks for the celiac info! That helps! Thanks again. I'll keep you posted! Chris
  2. Hi everyone, I am new to this forum. My name is Christine and I live in NH with my husband and son (2 1/2). I am also expecting and due in May. I found out a few months ago that I have celiac disease (my son too) and we are on a gluten-free diet (no wheat, barley, rye, oats). Since going on the diet, I have noticed some amazing changes in my health. My autoimmune disorders seem to have disappeared and I was able to cut my thyroid meds in half. Also, I am no longer anemic or deficient in vitamins or minerals (I need to take mega vitamins and iron though). I also got pregnant after one try this time, and it had taken 6 years to have my son! One thing that is strange however, is that I seem to have a lot more blood in my system and after going on my diet, I had a bunch of veins show up under my skin - like they are swelling. I also suddenly broke out in spider veins all over my legs and bottom ribs. My heart feels like it's always pounding (thyroid is currently normal). On a good note, I definitely have more color to my skin. I was always extremely pale and now I look more "normal". I am still experiencing fatigue however, and this heart pounding has been worrying me - especially now that I have learned I'm pregnant! (But it started well before the pregnancy) I am short of breath quite often. I have always had low blood pressure and black out often from standing. I have always had a quick pulse. I see a naturopath (plus regular docs) and she thought maybe it was my adrenals since that can cause blacking out and LBP as well, but my tests were fine. I did find out I have Leaky Gut Syndrome. Gross name, I know. Oh, I also have been very sensitive to light and noise and chemicals in the past year or so. I read that that can be a symptom. I also have been seeing "spots" I guess you could say. I notice them when driving mostly, in my upper field of vision. It almost looks like thousands of little electric worms crawling over each other frantically. That's the best way I can describe it. (You probably think I'm nuts!) I saw my primary doc today and my pulse rate sitting in the chair was 104 bpm. I had been sitting for about 5 minutes. My BP was something like 105 over 80 I think. She wrote "tachycardia" on the sheet and the nurse did an EKG which was fine. She made an appointment for an echocardiogram "just in case" and that is next week. I guess my question is... Will the echo show anything? Will it show POTS if I have it? Treating my celiac disease has helped me ragin some of my health, but I still cannot exercise and feel so weak. I know there is something else. Thanks so much for reading this! I hope you don't mind me asking your advice! I hope you are all feeling well tonight. Chris
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