andybonse

hmm, after reading symptoms about hyper andral pots, I do have a lot of them quite strangely. As I read it says it can result of injury, when I was 16 I was on my bike and went up a ramp and came off hurt myself and broke my collarbone and had to have surgery to fix it, just wondering if its a possible cause hmm!

Thanks Well my doc gave me a 24 hour urine test for cachemolines testing for adrenal tumors, but my levels came back normal so doubt its the hyper pots but my blood pressure goes up not down on standing, after 5 mins it goes bck to normal though

I think some of the shortness of breath is in my head, everytime I stand etc, Im constantly thinking about it so I do think some of it is phycological! Its funny how I was at the gym last year pumping iron haha, I got quite big and never thought anything of POTS even though I had it then, and a lot more walking I used to do. Its funny though I did sometimes get chest pain but went away fast. I am starting to think, over the last 6 months, I have not even exercised, just drive to walk get home sit down, so it may be I am very out of shape which has made my POTS worse and my job is a deskjob, but i've been off 3 weeks from all of this. Do you think its a good idea to get a home excersise bike blast an hour a day on that get fitter again and see if it helps? Going to see a cardiologist on Tuesday who knows about POTS so hopefully he can help, just hate the idea of all sorts of medication at 21 . I have read though some people that get it young can grow out of it, I've had it since 18 I think, I guess I was classed as a teenager and could possibly get better. *****, just looking at people doing normal things makes me angry then upset, blah! Thanks for listening to my rubbish posts though! appreciate it

Thanks for the info, sometimes I feel a little short of breath and my HR will be 110 when im standing, if the beta blockers brought this down, would it also reduce the shortness of breath? Not sure if its from the heart rate being high or not?

Also, my blood pressure ranges from *usually* 120/60 - 135/80 which is obviously within normal ranges, so hopefully a low dose would not have a HUGE impact. This POTS is rubbish, is there any extensive research been done to this, i.e would you look forward to some new findings and great treatments in 10 years time say?

Thanks for the reply, My issue with POTS is only the heart rate, I dont have any other symptoms really, just the feeling of my heart going up by 30 beats when standing, I hate it, I feel like I have a problem with my heart but i've had all the tests under the sun nearly! I bought myself a portable hand held ECG monitor, keeps me happy that my heart is beating normally! lol. My main issue is, I have been diagnosed with Asthma my whole life, It never effects me, never had a asthma attack really either and beta blockes cant be used in people with asthma, but there are some beta blockers called cardioselective and apparantly people with asthma can have them, hopefully my doctor can enlighten me. However, If I'm correct, I should be able to stand up while taking beta blockers and instead of a 30 heart rate raise, it possibly be only a 15 heart rate raise while on them? Would this be acceptable say? Obviously your not a doctor but I guess this would "cure" my symptoms and also allow me to be a lot happier! My problem is I suffer my anxiety / panic attacks, just recently in the past 3 weeks, Ive been off of work because of them and now I have seemed to made myself more aware of my POTS, I've had it undiagnosed for a few years not realy bothered me and thought the heart rate raise was normal! Thanks.

Hello, If the heart rate increases by 30 when standing up, if I we're to take beta-blockers, how much would this be redcued? I never faint or feel like fainting either, would this make me feel like im going to faint as the heart rate would be lower when standing and POTS needs the higher rate? As obviously the blood wouldnt be going to the brain as fast if we slow it down?

Thanks for the replies! I have started drinking Powerades 1 litre a day to see how this helps, plus 2 pints of water throughout the day also to make up a total of 2 litres.

Thanks for the reply, I have had Echocardiograms,ECGS,24 hour ECGS, blood work for all sorts, Stress ECG. I'm going to an cardiologist/elctro on Tuesday to see what he says about POTS, he was on a POTS website so sounds like he will know what hes talking about. I sometimes get 120BPM when washing the dishes, it varies but I dont get really bad symptoms, just dont like the feeling of my heart going fast for no apparant reason lol. I used to be so fit until 17 and got my car!, Swimming, Running, Biking, Karate etc.. I was thinking de-conditioning may be playing a part in this. Scary position to be in with heart problems Im sure youll agree! I even bought myself a portable ECG lol.

Hello, When I stand up my heart goes up from 60 to 90 usually. However I've been getting up extremely slow and it goes up for like 10 seconds then is normal just an extra 10 beats per minute. This does not happen all the time but if it was POTS would it happen EVERY time you stand up? Does anyone here with POTS experience when they have been standing for a certain period their heart race goes to normal? Not sure whats going on here!

Hi All, I'm new here so thought I'd try get some knowledge! I have had an increase in my heart rate by 30-34 beats for a year or two now, I'm 21 male and live in the UK. I have never thought much about it until now a lot of things have become clear, the feeling slightly short of breath when standing and the heart is racing, its usually like 60-70 at rest then 90-105 etc. I have been to the doctors due to chest pain when excersising and had an echocardiogram,ecgs(lots),24 hour ecg, stress treadmill ecg, all sorts of bloods and diabetes test, all normal. I was like but i'm getting this pain but was shrugged off. I recently started having panic attacks and very anxious, I'm getting to the point where I cant go to work because of them and nervous to go out far or drive. So, I went to the doctors today for like the 5th times in a few weeks, saying I think I have POTS, funny enough sometimes when I stand i'll be ok and it wont rise much like it shouldn't and he said its anxiety and shrugged it of, but if I lay down or sit down for a while and do it, it will show but he wouldn't have it. I wake up in the night for the toilet and the heart pounds as usual, it's just annoying how he didn't believe me! However, I have private health insurance and am being refered to a cardiologist who specialises in POTS, so hopefully he can help me. Not sure on what I should be prepared for etc? A few questions, As my heart race goes up by 30-34 and is usually not so demanding with symptoms, could treatments get me back to normal? I know some people get it really bad and its disabling and I can appreciate how hard this must be! Can it get considerabley worse? It hasnt over the year or two but I'm afraid of it getting worse! I have my whole life ahead of me and am quite scared about this. I can excersise fine usually, could this help at all with the heart rate / symptoms? I am asking this from a perspective of people already going through the same thing and not as medical advise! Thanks! Andy