Roxanne

I would probley be looking at getting a 2or3X depending on if they run smaller and like 1 large, they are all nice designs it was hard to chose one for my vote. Who knows I may need more but have to ask around the family if interested.

I am also from ST. Clair Shores, MI. I was diagnosed in 1999 with ncs and pots by a really great dr. in our city but unfortunatley he moved to Iowa a year ago and I am in the same place as you are now and I don't like it. After being with him all that time and starting over was not easy. I just went to see another new cardio dr. today who said I was a complacated case and she hasn't even seen my records yet. Have the feeling I will be looking again. If you want to chat sometime my email is bobonalimb@aol.com my name is Roxanne. I do have a great neurologist around here I really like. Well sorry I could not be of help but thought what a small world to see our city up there so good luck hope all goes well.

I know how you feel. I would not only be so wiped out but I would get migrane headaces. My gyn started me with every 3 months I would stop the bc pill to have one, to now every 6 months. I told her how awful I would feel and be in bed all week so I now only have it twice a year. Actually this week will be the first one that I will have from 6 months so don't know what will happen she said maybe nothing because of taking the pill so many months in a row that would be nice. Hopefully this helps with you just ask your dr. tell them how awful it is and hopefully they will be sypathetic with you. good luck

I was horrible at that time of month also, horrible headaches etc. My gyn had me on the pill 3 months then my period. Well I asked her could anything else be done because it was terrible keeping me in bed every 3 months. So she now has me on them for 6 months at a time so lucky me I only have 2 a year and love it.

Well not sure if this has anything to do with your problem. But my 15 yr. old daughter was just diagnosed with polycystic kidney disease and when I told my neuroligist that they we're checking her for this he said that it would all make sense and fall into place with my having pots and ncs. Not sure why I have not talk to him since her results. Her dr. had my husband and I do the kidney ultrasound but found nothing. What is really weird is all of a sudden now my blood pressure is going way up just like my daughters does. They say that the pkd does not show up till like 40's and I am 41 I have to wonder are the cyst just not showing but I can't have a MRI with my pacemaker oh what else can be wrong.

I also get the headaches but kept track and noticed I always get them at my time of month. I also get very symtomatic with my pots and ncs. My gyn had me take the pill for 3 months and then have a cycle but, that is still to much I spend the week in bed. So now I am going to have one ever 6 months and it does not hurt to do this. But those headaches sure do, I also get them if under alot of stress. Roxanne

Hi, I also have NCS and POTS. My pacemaker was put in 99 it has been 5 years and it really helped me alot. I am taking a beta blocker but low dose of lopresser. I also take florineff and celexa ( antidep.). Well before all this I was passing out and having major episodes all the time. It took them almost 10 yrs. to figure out what was wrong with me. Dr. says I use my pacemaker alot these days but says atleast we know its working. I have not passed out one time since my pacemaker so I know thats a good thing. I still have my bad days thats for sure but not like before. Well don't want to go on to much hope this helps some. Take Care, Roxanne

HOT SHOWERS ARE A NO NO FOR ME BEFORE MY PACEMAKER I ALWAYS PASSED OUT NOW THEY JUST MAKE ME HAVE AN EPISODE I GET TO FEELING REAL SICK AND HAVE TO LAY DOWN. HOWEVER I DO HAVE A HOT TUB AND CAN GO IN IT BUT JUST FOR A SHORT TIME OR ATLEAST HAVE TO STAND UP TO GET THE COOLER AIR FROM ABOVE BUT I USUALLY DONT STAY IN LONG BECAUSE I KNOW I START TO FEELLING BAD JUST ANOTHER THING WE CANT DO ROXANNE

HI EVERYONE! I DON'T POST TO OFTEN, BUT I DO READ EVERYONE ELSE'S ALMOST DAILY. ALL OF YOU ARE SO WONDERFUL IT HELPS TO READ YOUR POST. I WAS ON ZOLOFT FOR AWHILE AND WAS HAVING ALOT OF PROBLEMS BUT DO TO OUR WONDERFUL MEMORY LOSS I REALLY COULD NOT TELL YOU NOW WHAT THEY WERE. I NOW TAKE CELEXA INSTEAD AND HAVE BEEN ON THAT ALONG TIME NOW AND THAT SEEMS TO BE JUST FINE. WHEN I SAW HOW HIGH OF A DOSE YOU TAKE I COULD NOT BELEIVE IT I THINK I WAS ON 50. I ALSO READ ABOUT THE BRACELETS I CANT WAIT! WELL GETTING TIRED SO NIGHT ALL.

I too have a problem sleeping at night not as bad now that I change from taking my celexa at night to morning. I had a sleep test and I also have restless leg syndrome which is common with pots and have sleep apnea but not bad. I also know if I don't get a good nights sleep I feel awful the next day. If its to bad I take MELATONIN by Natures Bounty it is only 3mg. is a nighttime sleep aid. I learned about it because my 11 yr old nephew takes it his dr. told his mom to give it to him because he takes what is similar to ridalin during the day and at night he can't sleep well this stuff works let me tell you. The nice thing is its all natural. It can be found at alot of stores. Price isn't to bad I paid $9.99 for a 60 tablet with 60 free. I hope if anyone tries this it helps them too. Let me know.

Hi, Well I guess this is my first post. I too get these pains in my head. When I asked the DR. about them he just said it was all part of having POTS and I really have a hard time cleaning the tub because if I have to bend over I get a real pressure in my head. I also noticed that if I over do it one day I usually get the headache the next so I have to learn to not do that. Well lets see if it worked.