Beverlyz

My son has low cortisone levels. ACTH stim test was normal. He is hypothyroid, and practically stopped growing. He is now on NP thryroid, cortef and fludrocortisone and is much better. He is far from 100%, but he is functioning. - but we need a skilled endocrinologist who understands dysautonomia. Any recommendations?

Dr. Ted Carrick, DC has been working in the area of neuro rehabilitation. He claims to treat traumatic brain injury, stroke rehab, vestibular issues, and...dysautonomia. My chiropractor's receptionist took her son to see him several years ago for migraines, which he suffered for years. He has not had a migraine since seeing Dr. Carrick. It sounds too good to be true. Any thoughts?

Looneymum- I am also a mom to a son with dysautonomia. My 14 year old has been sick for 2 years since attending a camp run by an occupational therapist - she apparently caused a major disruption in his vestibular system, which triggered autonomic instability. My son and I attending the DYNA kids weekend a few weeks ago and made useful connections with other parents and kids. They DYNA forums have been great - It's been good for my so to see that he is not alone. I am so sorry your son is so ill. My son is going to see Julian Stewart tomorrow, and will get the full round of tests so we are hoping for more information and direction. There are so many treatments out there and so few will help, and the wrong ones can hurt alot! All the best to you.