Hi-I am new-I don't have a diagnosis but I am very curious about this and anxious for my next Drs appointment to ask to be tested for this. I don't even know where to start. As a teen I was diagnosed with Raynauds. About 12 yrs ago I started having multiple "spots" (talangilatasias) and in the last 6 years many other symtoms such as Esphogical dismotility, extreme fatigue, shortness of breath, very dry in some areas,feeling of weakness, muscle aches, bowel issues and dizziness. So at this point I am diagnosied with limited Scleroderma, Mild Pulmonary hypertension, severe Raynauds, mild sleep apnea. For the last few years I have been constantly telling my drs that I have EXTREME fagtigue-the kind of fatigue that makes me just have to lie down, shortness of breath and the scariest is dizziness on exertion-I get very dizzy, tunnel vision, my hearing gets distant. I have not passed out but I have come very close-slid down walls with my back or hold on to things bent over until I feel better. The Drs say that My pulmonary hypertension is too mild to be causing these symptoms. I have a Rhumatologist, cardiologist, pulmonist, Gastro, OB/GYN and I just saw a neuro. I have a multitude of tests and every doctor comes back saying they don't know what is causing it-mostly I've been told to loose weight and get more exercise ( I am overweight but not drasticlly) The last Dr I saw was the neuro who was very kind and compassionate and said she felt really bad because I keep hearing this-but my EMG showed my muscles were fine and she could find no reason for my weakness and dizziness. She suggested I go back to the cardiologist to get the Pulmonary Hypertension re looked at. Just after I saw her someone mentioned POTS on my scleroderma forum so I looked it up just to see what it was. As I read the symptoms I actually started crying-I sent the link to my husband at work and he was shocked. I fit almost all the symptoms. Everything I have been telling Drs for years now that are symptoms were in the list of POTS I have tried checking my heart rate which I know is unofficial but the first time I went from lying down at 98 to up to 134 after 10 min of standing. I have checked it since and it wasn't as drastic- 86 up to about 98 or 95 up to 120. I know I need to see a specialist in this and it may even not be this but after so many years of feeling so horrible and made almost to feel like I'm crazy it is nice to have a possible "real" reason for it. I live in Southwestern Ontario if anyone has suggestion of where is the best place to go for testing. thanks for listening and sorry this is so long