katejude

Not that it matters but this Michigan group...anyone of you have adrenal problems too?

kate

I am new to the board and a RN too!!!!

What is up with nurses getting POTS????? I am serious! I blame it more on AI but I know another RN with POTS and secondary AI like me.

Katejude

I think there is some definite validity to your point. Its catch up all morning. Kind of like my HC.

Adrenals are steroid and hormones. ACTH is a hormone that increases with primary disease. That will cause hyperpigmentation.

Thanks everyone.

I am getting the stockings.

Yes I have seen three cardiologist. No way will I try a beta blocker. My BP is too low from the AI and to drop it more would make me sick. I use to be a cardiac rehab RN....now I am a rehab job. I was on BB when I was in the initial phase of hyperthryoidism when this all started and it made me sick. I actually took the info from this website and my PCP agreed BB would aggravate my BP's.

SSRI's....Nope. xanax...I think if I took on a more regular basis maybe would snap my ans under control. It works for me and I dont have any adverse side effects from it.

I salt plenty and drink lots of water. My doctor is running 24 hour urine sodium levels. He thinks I am spilling more than I should despite adequate amts of florinef and hydrocortisone.

I try not to set limitations for myself either. I try to maximize my day but realize I have to put rest periods laying flat in between. This disorder is bizarre.

The AI really wasted my muscles and I am trying slowly to rebuild those muscles too.

Why is it in the evening things seem to settle down?

katejude

I live in Grand Rapids.

katejude

HI-

I am new. I have dysautonomia. I also have adrenal insufficiency. I truly believe had my adrenal insufficiency had been diagnosed and treated "sooner" I would not have ended up with the dysautonomia.

My first adrenal crisis flared up my ANS. My hydrocortisone and florinef helps but still I stand and go from 60 bpm to 100-120 making a piece of toast. It doesnt come down either. MY blood pressure will stay around 90/60 then start dropping if I continue to stand. My legs turn bluish/purple and will get white patches.

This part of the disease is terrible. I use to be an avid exerciser and work as a RN. I have had to stop working.

Does it get better? It is better but not as far along as I thought it would be. My doctor has given me xanax for when my symptoms get out of control. I salt and drink abundantly.

I was untreated with the AI for about three years. Could my ANS turn around?

Thank you.....I really have found a lot of info on this board.

Katejude

I am new to the board. I have dysautonomia. I ALSO have adrenal insufficiency. hyperpigmentation could be a sign of increasing acth levels or AI. I would explore that with your doctor. My AI is a cause of my dysautonomia.