Achilles2323

Thank you!!!!

Awesome to hear

PCP wants to start me on it. What do you think ? Worth a try ?

Thank you so much I am a little nervous about this scenerio

Dr blitzhyn seems to think I might have mito disease I was jus wondering if anyone knew the specific blood test To check for mito ? Besides the.muscle biopsy ?

If you were able to go to one of the top specialist associated with POTS what would you ask ?

any ever have normal bp hr and still feel very lightheaded and almost off balance while walking or standing ? almost swaying ?

Can a MRI test detect early Alzheimer's?

any 1 have any clue what the withdrawal symptoms are on midodrine and doxazosin ???? i was taken off doxa 2 weeks ago and midodrine this week

thank you so much i have many Alzheimer's symptoms =/

Can pots cause Alzheimer's type symptoms ???? I am really scared I might have it...

A lot of people with pots ....do they wind up having g mito disease or is it rare ?

Oh OK Is it rare ? And does any 1 know the main symptoms?

Mitochondrial disease any clue how to rule this out ? can stress echo rule this out ? or are there other tests ?

They are the worse ;/

wow and i am frustrated after 5 months =/

How many of you have never found the cause of there POTS ? And how long has it been ? For me 5 months no 1 can tell me what happened :/ I know people have been going on longer much longer

Well then I hope its not pheo :/ Really dunno what to do These attacks are horrible

http://www.mayoclinic.com/health/pheochromocytoma/DS00569/DSECTION=treatments-and-drugs

really appreciate all the info and help on here but doctors are not sure whats going on =/ they are gonna look into pheo but i am not so sure my self just know the feeling is awful thanks for all the support

So last night i had to call the ambulance again.... hr went to 170 when i took my bp it was 170 over 105 with a 135 heart rate my body was shaking like i was freezing cold calmed down after about 30 minutes to an hour i am not really sure what to do during these episodes as they are fairly new to me i had 1 a week for the passed 3 weeks i feel awful the next day as well.... and when it happens it feels like doom ...i know it sounds silly but its the worse feeling in the world can any 1 help me with this ? has any 1 ever had this happen 2 them ? and if so how do you cope with it ? doctors are looking into pheo and etc until then i am not sure what to do i cant keep calling the ambulance =/

Silly question but I have to draw blood tomorrow for a lot of tests the doctor ordered. I have a 24 hour urine test and tomorrow as well will the drawing of the blood effect the urine test Cortisol and catacholomines urine

ok so its not just me =)

Has any 1 ever had a stress echo done ? And if so did it reveal much ?

thank you very much. i will try the test out on some 1 without POTS