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Posts posted by Achilles2323

  1. i had a normal skin biopsy

    normal emg/ncv

    i have developed this burning pain all day long in my thighs and my biceps for anything i do

    does anyone else have this type of pain and does it have to do with POTS ?

    any help would be much appreciated =/

  2. Yes it feels as if i am doing a workout all day long

    but they have checked my lactic acid many many times and its always normal

    my legs and arms burn all day long for anything i do

    and the doctors cant figure it out

    i have had many many many tests

    120 doctors in the passed 8 months and no 1 has a clue

  3. i was wondering if anyone could help me with Mito. I have POTS / Gilbert's Syndrome / GERD & 1st degree AV Block..A Dr from the mayo clinic said she suspects it could be Mito or metabolic ....i have had an extensive workup outside of those 2 areas from head to toe..they cant find whats causing my POTS...i am having terrible burning pain in my arms and legs all day long and it wont stop...not necessarily weak just very bad muscle burning ....they have just started some simple blood tests for mito and i was wondering if anyone can be some help as if it has any significance or links to mito ? or if anyone can tell me how there bloods compared....i have lost 30 pounds in 7 months and my wedding is next month so me and my family are in desperation mode ...we have been to NYU - Presbyterian and Mount Sinai no 1 can pinpoint whats going on... here are some results i just got back the other day...as i know none of us are doctors i am just asking for opinions or comparisons to other that might lead me in the rite direction

    Amino Acids Plasma

    High threonine 226
    High Glutamic acid 171
    High Proline 455
    High 3-Methyl-Histidine 2.1
    High Ammonia 43 Blood
    Low Copper 63 Blood / Always Low
    Low Vitamin D 26.6 Blood / Always Low

    Normal Hematology
    Normal Chemistry
    Normal Urianalysis
    Normal Thyroid
    Normal B12
    Normal PET/CT of the brain

    i am so sorry for the long Post....we are just lost at the moment.
    If any 1 could provide help or guidance it would be much appreciated.
    If you need any other blood urine or scans i probably have them and can give the results but these are the ones that might relate 2 Mito.

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