tishag

Hi- I already looked at the "What to avoid" information to get some answers but was just curious... Has flying had an effect on any of yalls POTS? Next month my bf and I wanna fly to visit his family and was just curious what to expect... I already hyperventilate rather quicky- I'm just wonderin if there may be something I can do to keep that from happening as well... Any input would be appreciated... Thanks, T

Mary- I did have some set backs getting my long term started... Because I didn't have it long enough- they were looking for a pre-existing condition, which required them to retrieve my medical records from every doctor and pharmacy visit since 2005... I still fight with long term from time to time... I am trying to get released to at least attempt to go back to work... I wont ever know if I can do it if I dont try... I didn't get a referral to see my *new* POTS specialists- I just made an appointment and went... When they asked me who referred me I said I found them on the potsplace website... I have gone through 4 cardiologists, just met my new one last Wednesday... They are testing me for stuff that no one has... I am glad I found them... Good luck! Tisha

Hi Mary, I've been off work since April 13th of last year... I was able to get short term disability through my job and it only lasted so many months then I had to apply for long term disability that was through work also... It only pays 40% of my what I would be making monthly if I were working... Which it is better then nothing... In order to even be considered for long term I had to apply for SSI- which I did get denied and had to appeal it... They said POTS wasnt disabling... I'm sure they've never heard of it and have no idea what we go through... I aint heard back from them yet on my appeal... Does your employer have long term disability? T