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Starburned

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About Starburned

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  • Birthday 12/21/1995

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  1. I found a rabbit in my front yard a couple months ago. He turned out to be an incredibly sweet and well trained bunny, so when we couldn't find his owners we decided to keep him. I call him Mordecai and the vet says he's a middle-aged neutered Dutch rabbit. He's absolutely wonderful and gets along just fine with the parrots. Here's a link to a picture, since for some reason it's saying I have too many images when I'm only trying to upload one... http://25.media.tumblr.com/a6415bc456a46866df9dee7c1ab09136/tumblr_mnskbriijS1qbconeo3_1280.jpg
  2. Thank you very much for your advice! Dealing with doctors certainly isn't always easy, and I am happy that I will soon be able to see doctors that don't accept minors. I had a ton of strep infections as a child, but not recently. I've also had obsessive compulsive tendencies since I was a child, so there's no tics or anything that really fits PANDAS. I did read a bit on that, and I will a little more. I have had tender glands in my throat all summer, which I chalked up to allergies but am considering getting checked out. Thanks again for your advice and kind words! I wish all the best to you
  3. As some of you may know, I was prescribed Effexor XR for migraines when I was 14 years old. It didn't help, but I was unable to get off of it due to severe withdrawal symptoms. My prescribing doctor was not only unhelpful, but incredibly unresponsive. After he moved, the hospital refused to let me see a pediatric neurologist as I am 17. They wouldn't let me see a regular neurologist either... as I am 17. So they insisted that if I wanted to see anyone I would have to drive 3 hours to be reluctantly seen by a nurse practitioner. Not that I have anything against nurse practitioners; I was just s
  4. Lately (past month or so) I've been having memory problems. I've been leaving out letters in words I know how to spell and forgetting words when I'm speaking. Language has always been my strongest point, so this is highly unusual. I'll need to go back and fix words every few sentences because of this when I'm writing manually. This also happens when I'm typing and I seem to be typing a lot more slowly. I tend to forget the words for things so I need to pause and think of a synonym. It takes me a long time to figure out what I was originally trying to say. It seems to have nothing to do with th
  5. I got really tired of the artificial taste of sports drinks really fast, so I decided to make my own. I got the water : salt ratio from here. Everything else is my own devising. Ingredients: 4 cups of water 6 tbsp (1/4 of a cup and 2 tbsp) cheribundi tart cherry juice (tart cherry juice, apple juice) ¼ cup pure pomegranate juice (not from concentrate) 3 tbsp fresh lemon juice (approx. the juice of 1 lemon) 3 tbsp sugar ¼ tsp salt Pomegranate and tart cherry juice are both recommended to prevent muscle soreness after a workout. So it's good for athletes with or without POTS. Apple juice co
  6. I haven't been on much due to life stuff, but I just wanted to give an update. Last month I tried to get off Effexor again. Made it 5 hellish days before I gave up. I'm trying to get my doctor to get me on a tapering plan, but he's been very unhelpful. I'm very frustrated that I'm 17, never abused drugs, and yet an addicted to the prescribed amount of a prescribed drug that I was never warned of the downsides of. But trying not to focus on that and holding out hope. Currently getting off Atacand and have had no problems with that, fingers crossed. The day after Christmas, I went to the clini
  7. This has been happening to me with varying severity for years. I was always told it was just stress. Sometimes I'll run my fingers through my hair gently, just to neaten it, and wind up with a handful of hair. I haven't noticed my hair thinning at all, though I've always been cursed (or so I see it when I'm trying to straighten it or brush it through) with really thick hair.
  8. I was prescribed it a year or two ago for migraines and it was completely ineffective. Have had a TERRIBLE time trying to get off of it. The withdrawal is horrible.
  9. I know how tough it is, emotionally, to not be able to do the things you want to because of health problems and being stuck at home a lot. I know for my sister and I pets have become sort of emotional therapy animals. My Hahn's macaw (picture in my avatar) in particular cheers me up with his happy, energetic, and cuddly nature. I do think he's helped me a lot in staving of depression.
  10. The same thing happened to me, initially. I went to a clinic because I couldn't get an an appointment with my physician that day, thinking that I had a UTI as I've had many times before, but the lab turned up negative. So the clinic doctor said I was probably dehydrated. Now, whenever I start to get symptoms I just drink more and it usually goes away. I didn't really see a doctor, but my doctor gave some advice/information when he gave me the lab results. He said that there is an increased risk for blood clots especially during pregnancy and when taking birth control. And that's important to
  11. In quotations because I'm not certain they are weird. I understand that different people experience different symptoms and that there are a large assortment of symptoms that come with POTS. The only other person I know with POTS is my sister, and I'm just going by what she experiences. Two symptoms uncommon between us are: Momentary deafness, in one ear or both. Frequent UTIs and UTI symptoms when not properly hydrated. If I lessen what I drink by even the slightest, I'll experience discomfort. Which, while a good incentive for me to stay hydrated, is extremely annoying. Anyone else experien
  12. Thank you! Especially for the sharing your experience with effexor. I've given up each time I've tried to get off of it, simply because adding more pain and knowing you can stop it is just hard psychologically. Thank you! I also had a terrible time with Topamax and was actually told I was allergic to it. I also experience a lot of nausea. I have problems whenever I eat anything and my stomach never really feels settled. Good luck to your son!
  13. Thank you! I don't know how I feel about that. It certainly doesn't sound like a pleasant test, but it would be nice to have something definitive after being stuck with "idiopathic" all these years. I understand that TTTs aren't definitive though. Thank you! It's nice to meet you as well!
  14. Thank you everyone! I actually live in Virginia, my neurologist is just in Maryland. Thank you very much! I believe it was Florinef my neurologist mentioned.I hope you daughter does well! Thank you very much! That's basically what my doctor said about TTTs.
  15. A little background: I'm a junior in high school and have suffered from idiopathic chronic daily migraines (and they are every day) for almost 4 years. I've done nerve blocks, Botox, acupuncture, physical therapy, DHE treatment, and taken every drug a myriad of doctors could think of. I'm currently only down to two drugs; Effexor (which doesn't help, but causes me to have severe withdrawal symptoms when I go off it) and Atacand (also ineffectual so far). Recently, my neurologist at John's Hopkins gave me a tentative diagnosis of POTS. By tentative I mean that he has not tested me for it and is
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