MaidMarian

Hi everybody, I was diagnosed with MS in 2009 at MAYO in Rochester. I have just come out of a painful dysautonomia flare up. I still have fatigue and symptoms but not nearly as bad as around Halloween. One thing that brought me great relief was my diet. I cut alcohol, caffeine and coffee, dairy, sugar, and gluten. This would seem hard but I was feeling so rotten I had no problem doing this. I ate lots of kale, spinach, artichokes, blueberry's, watermelon, along with chicken, steak, salmon, and tuna. I ate lots of salted fruit and drank 4 1.5 liters of smart water daily. After a week of this, I was relieved of great pain and able to function normally. I also read that synthroid (thyroid medicine) causes dysautonomia so I cut my dose in half, and a week later my symptoms were gone, so I don't know if it was the diet, cutting the meds, or both. Anyway I am wondering: has anyone had the CCSVI procedure to relieve their dysautonomia/ POTS? I have learned that I really don't have clinical MS but actually POTS. It was always syncope/ presyncope that triggered sort of a nightmare spiral of autonomic dysfunction. Here is the video of Dr Michael Arata in Newport Beach explaining the surgery and the great relief it has brought to dysautonomia. If you are not familiar with the CCSVI procedure it was a medical breakthrough procedure discovered by Dr Zamboni in Italy 5 years ago. His wife had MS and he discovered that the jugular veins in the neck were not functioning properly. Since then it has been a hot topic amongst MS patients, please google and read about the great relief it has brought some, (not all) MS patients. Here is the link of Dr Arata explaining it, I would love to know what you guys think and if you have had it if it relieved your POTS: http://www.youtube.com/watch?v=AlSBVuOQknA