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1210donna

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  1. Hi Emma, just letting you know I have EDS with O.H/POTS and autonomic neuropathy (apparently EDS related then worsened following chemo) and central apnea... no mast cell but do have primary immune deficiencies to juggle... thought to tell you so you know you're not alone with such chaos.
  2. an AHI under 5 is considered so 'little' in apnea terms they don't prescribe a machine for it. I have mixed sleep apnea (primarily central and hypopnea with the occassional obstructive), unlike obstructive with my centrals and hypopneas there no struggle whatsoever and during centrals I can look quite dead, especially during an 80-90 second one, lucky those I'm having at present are only under 30 secs - yay... and I have mine during the day as well but now managed - phew. But the hypoxia of central apnea, hypopnea, bradypnea makes me feel as if I've smoked a packet of cigarettes... I feel icky and oxygen depleted. Having a great run the last month or so though - it was really hard to sustain hope when it was so full on for so long... I've had daytime central apneas/hypopnea/bradypnea since 2 yrs old, just it suddenly flared a few years ago then really ferocious following chemo. Wishing you all well in your journies.
  3. I have had low level dysautonomia all my life, including this breathing issue... during chemo I was formally dx'd with dysautonomia and following chemo the breathing issue got dx'd as Central Apnea (with Central apneas, hyponeas, bradypnea episodes)... it was happening at night and during the day, so I'm on CPAP at night... finally cracked the daytime centrals using salt 6g, calcium, magnesium, glutamine, taurine, citrulline plus low salicylate as salicylate levels sent my centrals soaring... really tough one to crack... anyone having daytime breathing dysreg I'd strongly suggest they get to a sleep clinic as its highly likely its happening during sleep too... and that can make ill health much more progressive and precarious... central apnea in sleep can risk heart attack, stroke and increases cancer mortality risk not to mention that hypoxia damages every cell in the body and brain dysfunction. I've had the breathing stuff since age 2 (had measles and mumps then which may have set it off) but it got worse a few years ago, then unmanageable after chemo. I seriously think my cancer was faster and worse because of untreated central apnea as part of my dysautonomia. Donna
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