Rosie

Thanks for the topic. I at least now know that I am not the only one that has inflammation after using my muscles, particularly muscles in the upper body. This also acts as a headache trigger at times. For me, I really don't think it is the muscles per se. I am leaning more toward a problem with the vascular system. Have any of you read about Collagen Vascular Disease? It is related to problem with the Immune System.

Interesting post. Rama. But this is me, from what I understand so far. I developed an aneurysm in the brain and see a neurosurgeon periodically to watch it. Once he remarked that my cerebral arteries were very large, "As in really, really large." I also have high levels of NE. And I believe that I have some autoimmune/autoinflammatory stuff going on. Whether the latter is due to low levels of D3 or not is yet to be determined. Seems I am a mix!! And I would assume I am not the only one. Nice reading about the working theories, though. Thanks for the post.

Mack'sMom.... Let me tell you a bit more of what I have been thinking/studying. I have MVP SYN, and my body produces lots of Catecholamines... stress hormones. In addition, any chronic illness is considered to be stressful. According to researchers, in the short term, stress can boost the immune system, but chronic stress suppresses it. I guess Adrenal Fatigue would be a good analogy. Our systems become tired. And so, according to this train of thought, the strength of one's Immune System would be dependent upon how long one has been ill and/or stressed out. Something else I have been reading about are the Autoimmune/Autoinflammatory Disorders/Diseases. There are definite ANS issues linked to some of these. This is where my readings are leading me due to health problems in my family that fall in these categories as well. Good luck all.

If you all don't mind a suggestion, when researching, look for the link between Chronic Stress and the Immune System... lots of info out there. And many of us have an over-abundance of Stress Hormones floating around. I am reading about this myself.

You made a connection! Good on you. I hope it will lead to a better understanding of your medical problems and tx for you.

Ramakentesh... thank you for responding. I try not to be nosy, but I am curious. I cannot prove the Autoimmune/Autoinflammatory connection at this point. However, the overlap in symptoms seem to be too many to consider it to be coincidental. Genetic testing is not too far away. I saw something that said in the near future sequencing of one's genome will cost about $1000.00. I think much of the speculation will soon be put to rest. I do wish you well, and I hope this flare is short.

Ramakentesh..... if you have Docs that will whack you in the face with studies, then you are indeed fortunate. It has been my experience that I have to do the whacking! I do try not to make assumptions about what is going on with me, but I do make educated guesses, and the ones I have made have been correct thus far. I have had problems that were not found by some good Docs until I insisted on testing. Now those problems are being treated along with my Dys. So you have actually been diagnosed with an Autoimmune/Autoinflammatory Disorder. You are the first person with Dys that I have communicated with who has been diagnosed, although I don't believe you will be the one and only. If you don't mind me asking, how long have you had the diagnosis? Nice to hear that it is Mild.

And I would like to add something as well re Autoimmune Disorders/Diseases. It does not matter if a problem starts with a virus or a bacteria, it can become Autoimmmune if the Immune system does not function correctly. Personally I do not see Lyme as THE cause of Dys. However, I do think Chronic Lyme may be another Autoimmune Disease. Before anyone says,'Not me', Have a look at the list at the link I will leave. I have MVP with Dys, which is inherited. Not long ago, I would have said, 'Not Me', as well. http://www.aarda.org/research_display.php?ID=47 And if anyone is interested, I would suggest looking at Autoinflammatory Diseases as well. Take care all.

Firewoman.... I have read lots of your posts. We have many symptoms in common. I have had symptoms as long as I can remember.... first fainted when I was about 7 yo. Have the headaches, etc. After I had a virus last Fall, and a weird reaction to that, I had looked at MCAD, and began the treatment protocol for that. But I went beyond the MCAD because I just did not feel that was the answer. Regards.

Hello Gary and all.. I don't post here often, but do still read. And I do believe you are on the right track. You might want to have a look at Autoimmune diseases + Pyrin and/or Cryopyrin (proteins). These act as 'brakes' for the immune system response. Some folks don't have these proteins, thus our bodies create the Autoimmune response. Regards.

Hi Morgan... Please have a look at Sleep Enuresis. You already know that your sleep pattern is not normal. This may be something that could be addressed with a GOOD Sleep Specialist. My best to you.

Oh, Morgan!! For goodness sake! Yes, do get your report. And if that doesn't answer your questions, then ask for the Data Summary Report. This is the report that is given to the Doc so a report can be dictated. Scoring sometimes is a big factor in these reports. I am so sorry that your test turned out this way.

Oh my, Paul! Sorry you find yourself with so many problems!! Do you have your Apnea under control? Treating my Apnea has helped me tremendously. Looking for that diagnosis was the best medical decision I have ever made, I think. For the SBS...have you ever heard of / tried Kefir? It is truly good stuff for the gut. If you Google it, you can find lots of info. By best to you and your family.

Oh, Morgan!!! What a terrible situation for you to be in. Honest to goodness there ought to be a law prohibiting such things. And Conversion Disorder.....unhuh, yeah right. Pfffftttt...and a very derisive pppffffffttt, at that. I hate to see you give up, but can understand why it seems hopeless. Maybe something will materialize. Yes, I know remembering dreams isn't 'normal'. I will still occasionally wake up when I have a vivid dream, but I don't remember it the next day. Tell your son he may want to hang on to the Auto machine if he can. The set up can be changed so that it will run at a straight pressure if he is more comfortable with that, but a straight pressure CPAP can never be changed to an Auto. Since he will have the machine for a good while, there may be a time when he might want an Auto. One that collects data is good as well. Take care.

Well, what is the matter with that man, Morgan!!!? Seriously, what are his objections? Maybe we can find something to convince him to change his mind.