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Angela

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Everything posted by Angela

  1. aderall is basically sythythetic meth so use it with caution- as rx.d benzo's i am not judging you, please believe me, my sister and so many of my sweetest friends got themselves in a mess over that stuff i hear (aderall) so be careful. born and raised in midwest...like every pharmosicial co. out there dr.'s get $ to promote drugs ie aderall is huge out there, and from what i hear, even celebrities take bb's to relax themselves.. i have seen so many of my friends get messed up off that stuff,,,aderall....so that is my only precaution.
  2. In conjunction to Issie's post on biofilm by Amy Proal, I found the following articles from scientistlive interesting as autoimmune has been connected with low vitamin levels, especially vitamin D and all the recent suggestions coming up that pots is autoimmune disorder/disease Medical Vitamin D dangersDeficiency in vitamin D has been widely regarded as contributing to autoimmune disease, but a review appearing in Autoimmunity Reviews explains that low levels of vitamin D in patients with autoimmune disease may be a result rather than a cause of disease and that supplementing with vitamin D may actually exacerbate autoimmune disease.Authored by a team of researchers at the California-based non-profit Autoimmunity Research Foundation, the paper goes on to point out that molecular biologists have long known that the form of vitamin D derived from food and supplements, 25-hydroxyvitamin D (25-D), is a secosteroid rather than a vitamin. Like corticosteroid medications, vitamin D may provide short-term relief by lowering inflammation but may exacerbate disease symptoms over the long-term. The insights are based on molecular research showing that 25-D inactivates rather than activates its native receptor - the Vitamin D nuclear receptor or VDR. Once associated solely with calcium metabolism, the VDR is now known to transcribe at least 913 genes and largely control the innate immune response by expressing the bulk of the body's antimicrobial peptides, natural antimicrobials that target bacteria. Written under the guidance of professor Trevor Marshall of Murdoch University, Western Australia, the paper contends that 25-D's actions must be considered in light of recent research on the Human Microbiome. Such research shows that bacteria are far more pervasive than previously thought - 90% of cells in the body are estimated to be non-human - increasing the likelihood that autoimmune diseases are caused by persistent pathogens, many of which have yet to be named or have their DNA characterised. Marshall and team explain that by deactivating the VDR and subsequently the immune response, 25-D lowers the inflammation caused by many of these bacteria but allows them to spread more easily in the long-run. They outline how long-term harm caused by high levels of 25-D has been missed because the bacteria implicated in autoimmune disease grow very slowly. For example, a higher incidence in brain lesions, allergies, and atopy in response to vitamin D supplementation have been noted only after decades of supplementation with the secosteroid. Furthermore, low levels of 25-D are frequently noted in patients with autoimmune disease, leading to a current consensus that a deficiency of the secosteroid may contribute to the autoimmune disease process. However, Marshall and team explain that these low levels of 25-D are a result, rather than a cause, of the disease process. Indeed, Marshall's research shows that in autoimmune disease, 25-D levels are naturally down-regulated in response to VDR dysregulation by chronic pathogens. Under such circumstances, supplementation with extra vitamin D is not only counterproductive but harmful, as it slows the ability of the immune system to deal with such bacteria. The team points out the importance of examining alternate models of vitamin D metabolism. "Vitamin D is currently being recommended at historically unprecedented doses," states Amy Proal, one of the paper's co-authors. "Yet at the same time, the rate of nearly every autoimmune disease continues to escalate." Biotechnology Creating autoantibodiesAutoimmune diseases have long been regarded as illnesses in which the immune system creates autoantibodies to attack the body itself. But, researchers at the California non-profit Autoimmunity Research Foundation (ARF) explain that the antibodies observed in autoimmune disease actually result from alteration of human genes and gene products by hidden bacteria.Not long ago, scientists believed they had located all bacteria capable of causing human disease, But DNA discoveries in the last decade have led the NIH Human Microbiome Project to now estimate that as many as 90% of cells in the body are bacterial in origin. Many of these bacteria, which have yet to be named and characterised, have been implicated in the progression of autoimmune disease. In a paper published in Autoimmunity Reviews, the ARF team, under the guidance of Professor Trevor Marshall of Murdoch University, Western Australia, has explained how Homo sapiens must now be viewed as a superorganism in which a plethora of bacterial genomes - a metagenome - work in concert with our own. Marshall and team contend that the human genome can no longer be studied in isolation. "When analyzing a genetic pathway, we must study how bacterial and human genes interact, in order to fully understand any process related to the human superorganism," states Marshall. "Especially since some of these pathways contribute to the pathogenesis of autoimmune disease." For example, the team notes that the single gene ACE has an impact on myocardial infarction, renal tubular dysgenesis, Alzheimer's, the progression of SARS, diabetes mellitus, and sarcoidosis, yet recently ACE has been shown to be affected by the common species Lactobacillus and Bifidobacteria. Found in yogurt, these species are often considered to be innocuous or "friendly." "No one would argue that these species aren't present in the human body, yet there has been inadequate study of how these 'friendly' species affect disease," states Amy Proal, the paper's lead author. "What we thought were autoantibodies generated against the body itself can now be understood as antibodies directed against the hidden bacteria," states Marshall. "In autoimmune disease, the immune system is not attacking itself. It is protecting the body from pathogens."
  3. C-Reactive Protein elevated (i.e. inflammation detected) + for protozoa vitamin B levels are skyrocket (doc said stop taking my vitamin b since they are connecting very high levels with cancer) magnesium very low siezure like activity noted on eeg in left temperal lobe and dva same place noted on mri sugar levels are sometimes a little high although sometimes normal
  4. hmm. a mayo clinic dr. (the only mayo dr. i have seen) that specializes in analyzing siezures and epilepsy suggested that I do not have seizures but brain slowing due to pots....note that I have a dva (has to do with vein abnormalty i.e. veins look like medusa in your head, only affects 1% of population and not considered dangerous unless they detect a carn mass where the blood is being dumped into) ironically it is in the same area of my brain as where the brain activity was abnormal (slowed) on my eeg which I believe has to do with everything or at least something. however, he believes I developed pots due to ptsd from my messed up childhood and eventually caused pots. I don't feel as if there was anything I havn't worked thru as far as the circumstances I have survived, I completely feel i am free from all past "demons" and very strong mentally, whatever, so I still am not sure I embrace his theory....i think there is more going on that is not quite understood. interesting tho that you kinda had the same dx for pots. I know for sure that when I am experiencing stress i have a flare but from whatever i understand stress affects all pots patients negatively. and nonpots people too. however again, I experiance flares, not constant pots for the last 8 yrs I suspect as well as mcas. I am also hyperandrenergic not low bp except in the a.m. hope u feel better soon.
  5. wow, mom 2 g, i was fascinated by the ratio of autoimmune male vs female but really interested in the APS factor
  6. i'll never ignore you:) that's the whole point...without arguement and thinking things thru someone else's eyes and multiple opinions, what/where would we be? still dx'd as having anxiety, like they did to pots sufferers 20 years ago i bet.
  7. hah yes! me too! I have reason to believe my dad was irish, well i know he was catholic and my mother is jewish. i read (not from a "published medical site") Decreases the Risks of Common Medical Issues Dr. David J. Hanson of State University of New York states that people who consume one or two alcoholic drinks, including whiskey, daily have a 50 percent lower chance of having a stroke or developing dementia in old age. This moderate amount of drinking can also decrease the chance of developing diabetes by 30 to 40 percent. These benefits come from alcohol's ability to increase good cholesterol and decrease blood clots. Decreases the Risk of Cancer Alcohol contains ellagic acid, an antioxidant that destroys cancerous cells. According to a study presented by Dr. Jim Swan and colleagues at the 2005 EuroMedLab conference in Glasgow, Scotland, whiskey contains more ellagic acid than other types of alcohol, providing even more cancer cell-fighting antioxidants.
  8. also, giraffe, it is known that harboring anger does cause health issues. ie. type A personalities are more predispositioned to heart attack/stroke. I am not saying that you are angry, nor anyone on this forum and that's the cause of pots.... but your personality and how you handle stress, at what level of stress you can cope and later have issues is certainly proven truth.
  9. why are women more likely to have autoimmune conditions? is it estrogen/hormone related or what? I have never seen any explanation on that. they say pots can hit due to stress, but if women are more stress tolerant than ***?
  10. okay, so i taught myself to read, write and speak cyrillic 10 yrs ago and hardly remember a lick of it now. at age 12 I taught myself short hand and to write/interpret ancient hyrogliphics. don't remember anything now,,,,,muscle memory lost I suppose. there is much research that shows handwriting changes with chronic illness, such as parkinsons handwriting gets smaller....google it, it is interesting. I have a hard time writing anymore, I can't even read what I wrote, it's weird. as far as conversation, I am responsible to answer a lot of emails and phone calls and i can throw off the emails untill i feel like I can respond appropriately however phone calls I sometimes find myself saying um,,, umm, ummm, even tho i know the answer in my head I cannot translate it thru words.
  11. i am never comfortable, either too cold or too hot albeit I passed the sweat test thingy I had done 1 year ago. usually too cold at 70 degrees tho but in az it gets super hot in the summer and I can't stand it at all..... i was raised in midwest so used to humidity and lotsa rain. I notice that I can always tell now when barometric pressure is off, before rain, my body aches like I have arthritis or something. Also, My big sis has ms not sure the correlation but I believe pots is progressive. she says my symptoms are worse than hers except now she feels like a dumb blonde (no offense anyone, and I am a natural dirty blonde). I feel like if I could describe how I feel it is a cross between parkinsons and alzheimers....i.e. shaking, trouble thinking and arranging thoughts and people at work noticed my tremors before I was dx'd with pots. So, yeah, not to be negative just my personal opinion, but I believe long term pots will progress to other disorders and dx.s
  12. you might want to stop taking it until you talk to doc. from what I read this is not a normal side affect. also, do you believe you may have asthma? i know that you have alot of food allergies. i also know from personal experiance that I have no tolerence for bb's which should not be taken with asthma. I have never felt like I had asthma tho....possible mcas. But if you are experiencing this heart pain, i would stop until talking to goodman. i had weird heart pains this week too tho, as did the receptionist at my work who is not pots. so maybe there is just something weird floating around here in AZ. also i read that if you have problems with anticholinesterase medications (e.g., neostigmine); or to bromides u shouldnot be on this. web md says: "This medication should not be used if you have certain medical conditions. Before using this medicine, consult your doctor or pharmacist if you have: stomach/intestinal blockage, urinary blockage. Before using this medication, tell your doctor or pharmacist your medical history, especially of: lung disease (e.g., asthma, chronic obstructive pulmonary disease-COPD), kidney disease, slow/irregular heartbeat."
  13. weird, red wine, specifically cab was always my fav but i noticed caused GI issues that i do not otherwise have if i limit alchohol to only drinking vodka. I am russian in heritage, well, baltic region and that's only my mom's side that I know of so Idk if that has anything to do with what I can/cannot tolerate well. I havn't tried wine since i've been vegan (1 month today!) but notice that I am much more solid (so to speak). i seriously think genetics has something to do with tolerance of alchohol and certain foods. I mean, they say red wine is good for your heart & blood flow but the sugar level is like eating a slice of cheesecake.....ummm...which I certainly crave. my gi issues only occurred when I drank red wine, never liked the white wines;)
  14. women are 4x more likely to have/get pots then men yet we have a higher "tolerance" for stress is proven. wasn't meaning to offend or suggest women are "angrier" then men in general. someone was questioning me if pots could be parasite related than why would pots affect women 4x more then men. the only thing I could think of at that moment is that we have sweeter blood. I guess I will do some more looking into that question. but, i'm not sold that pots is always parasite related but in many cases. but, question remains, why women?
  15. i feel better 2 when elevated. doesnt fix anything tho. just seems 2 help with vitals.
  16. but my argument against that women are not acceptive of violence would be, yes, we have started alotta wars, via men. Thus the kneck turns the head lof'n l
  17. someone suggested 2 me regarding why pots and perisites are related, and why giirls are more affected than men...twell, as i underatand pots is more common im fm anway.is there is a difference in our biochemistry i hope all u galls out there are not insulted but it does make some sense...you gotta appreciate that we can be ******..is it hormones that make us more susceptable to POTS?. Because of their body size, hormones, and biochemistry, women are not as action-oriented as men. They are weaker physically, so they don’t make as good robbers and rapists. They are less often presidents of nations, so they can’t start the wars. Most women stay at home or work in schools or offices., Action is a constructive response to a need or threat. Anger is simply an adrenal “preparatory action” in response to need or threat. Men, who are bigger and stronger, and who command more power in most societies, tend to respond with action. Women get angry, also, but do not act as much as men do. Men discharge their fears and their upsets through action. Women tend to discharge their fear through anger and perhaps turn it inward and become depressed. This can cause some women to become irritable, “******”, depressed, upset, or underhanded in their methods of hitting back against those whom they think have hurt them. This can be very subtle and hard to detect. Most of their anger is directed at their mates and their families, because this is where women live most of the time. A lot of their anger is also directed inward, where it causes suppression of emotions, depression and often diseases and emotional upset.
  18. the dr. who figured out the serious ulcers are most often caused by e poli and treated his patients with antibiotics for the parasite had to swallow the bugs himself to prove his theory took him over 15 years of critizism of his "speculations" and now that is common knowledge and how those ulcers are treated. not mad at ya, just saying.
  19. here u go rama, and to all who might connect something via this info, also note on dinet a cause of pots is the protazoa chagas, which is published I believe, so yeah, obviously parasites and protozoa/biofilm are proven autoimmune and can cause pots, LYME DISEASE SYMPTOM CHECKLIST James Schaller, M.D., M.A.R. The following checklist is not meant to be complete or authoritative. Information about Lyme disease is constantly emerging and changing. Therefore any checklist is intended for use as a starting point. In traditional medicine, a physician performs a complete history and physical. Labs and studies assist in clarifying the differential diagnosis. In Lyme disease, much debate exists about laboratory kits, the alteration of kits to have fewer possible bands, and which labs are optimally sensitive and specific. This checklist is not intended to address that issue or treatment. Over 200 vectors carry the Ixodes tick, which is the most commonly known insect spreading Lyme disease. With so many vectors, the underlying assumption behind this checklist is that Lyme is not rare in North America, Europe, South America, Russia, Africa or Asia. We know Lyme disease is highly under-reported. Immediately upon the onset of a tick bite, it transmits a pain killer, anti-histamine and an anti-coagulant. Based on animal studies, it is also possible the bulls-eye rash is less common then assumed, in part because injections of spirochete related material in laboratory animals only show a rash with the second injection. This checklist is offered with the sincere wish that others will improve on it Some of the checklist materials might be new to you, which underscores the need for another scale to add to the ones currently in existence. This list is based on a massive review of thousands of papers over a decade of full-time reading, 2012 science revelations, and/or massive chart reviews. Since modern Lyme disease seems to focus on tick borne disease and other laboratory testing, I will start with lab testing considerations. If a lab test has a value or a percentage, the numbers I am picking are meant to avoid missing positive patients. I am concerned about physicians and other healthcare workers not treating an infected patient, who over time can experience disability or death at a frequency that is impossible to determine. LABORATORY TESTING—INDIRECT AND DIRECT 1. Vitamin D level is in the lowest 20%. If you supplement, it should be in top 50%. 2. CD57 or CD58 is in the lowest 20th percentile 3. Free testosterone is in 10th percentile or below 4. In 5% of patients the testosterone or free testosterone is over the normal range. 5. DHEA is in lower 20%. Or rarely is it fully over the top level. 6. Free dihydrotestosterone is in the lowest 20th percentile or well over the normal range. 7. Epstein Barr Virus is abnormal in any measure. [This virus is believed to be positive over normal positive levels in the presence of infections or high inflammation.] 8. On the Western Blot, IgG or IgM any species specific band at any blood level, e.g., 18, 21, 23, 30, 31, 34, 37, 39, 83, 93. 9. A free T3 level under 2.8 [the normal bottom range in 1990 was 2.6; the influx of large numbers of elderly patients reset the healthy “normal” range]. 10. Positive for viruses such as CMV, HHP-6, Coxsackie B Types 1, 2, 3, 4, 5, 6, Parvo B-19 or Powassan virus 11. Positive for Mycoplasma, e.g. mycoplasma pneumoniae. 12. The patient is positive for infections other than routine Lyme, [that is Borrelia burgdorferi sensu stricto, Borrelia afzelii and Borrelia garinii]. Some of the other infections also carried by infectious ticks, fleas or other vectors include Babesia (duncani, microti or other), Anaplasma (HGA), Ehrlichia (various species/strains), Rocky Mountain or other Spotted Fevers, Brucellosis, Leptospirosis, Q-fever, STARI (Master’s Disease), Malaria, and Bartonella [e.g., B. henselae, B. quintana, B. elizabethae and B. melophagi]. Once tests are commercially available for testing all forms of protozoa affecting humans, including FL1953, all Bartonella species, and Borrelia miyamotoi and other Lyme species, reporting should increase. 13. IL-B is in lowest 10th percentile 14. IL-6 is in lowest 10th percentile 15. TNF-alpha is under 2, or in lowest 20th percentile 16. A WBC count was, or is, under 4.5 17. Eosinophil level in the CBC manual exam is either at 0-1 or 6-7 18. Total manual Eosinophil level is 140 or less 19. XRAY or other study shows cartilage defects in excess of injury or age median 20. If a full auto-immunity panel is run with at least eight different tests, two are positive; for example, you have a positive anti-gliadin and a positive thyroid peroxidase. 21. Positive or near positive (borderline) ELISA, PCR, or a positive tissue biopsy; or a tick from your body is positive for Lyme or other tick infection 22. Lab tests show high inflammation, e.g., a high C4a, elevated cholesterol and C-peptide. These are never specific just for Lyme 23. Lab tests show a MSH level under 30 [the reference range of 0-40 is due to the increase of very sick patients tested, and 40-85 is a better reference range which was used before the flood of the sick reset the range of normal]. MSH is an anti-inflammatory hormone. 24. VIP is under 20. This is an anti-inflammation chemical. BODY EXAMINATION RESULTS 25. Weight loss or gain in excess of 20 pounds in 12 weeks 26. A round or oval rash with a dark center was or is present in a loose “bulls-eye pattern.” Other size and shape rashes that have no other cause after exposure to ticks and vectors. 27. Healing is slow after scratches or surgery. For example, after a cat scratch, flea bite or tick bite the mark is still visible later. 28. Skin on arms, hands or feet has a texture like rice paper. 29. Clear reaction and effect seen with antibiotic treatment. Specifically, a marked improvement or worsening of a serious medical problem or function is observed with a spirochete killing treatment, e.g., doxycycline, tetracycline, minocycline, any penicillin such as amoxicillin, azithromycin, clarithromycin or cefuroxime. 30. Presence of skin tags, red papules of any size, excess blood vessels compared to peers, and stretch marks with color or in significant excess of peers. 31. Moles and raised or hard plaques in excess of the few on normal skin. 32. Areas of skin with ulcerations such as those seen in syphilis, but at any location on the body. 33. Areas of clear hypo-pigmentation and hyper-pigmentation 34. Positive ACA (Acrodermatitis chronica atrophicans) which is a sign of long term untreated Lyme disease. Some report ACA begins as a reddish-blue patch of discolored skin, often of the hands or feet. It may include the back in some patients. The lesion slowly atrophies over months to years, with many developing skin that is thin, dry, hairless, wrinkled and abnormally colored. The color of the extremities such as hands and feet can be red, dark red, brown, dark blue or purple. SAMPLE NEUROLOGY EXAM 35. Patient’s short-term memory is poor. For example, if asked to recall these numbers—23, 5, 76, 43 and 68—the patient cannot recall them. 36. Patient cannot reverse four numbers, so if given—18, 96, 23 and 79—the patient cannot do it. 37. If asked to subtract 17 from 120, (college graduate), it cannot be done in a timely manner. If a high school graduate, subtract 7 from 100 and continue to subtract by 7 four times in 20 seconds. 38. Light headedness upon standing quickly in excess of peers, and with no clear cause 39. Dizziness unrelated to position 40. Dizziness made worse by Lyme killing antibiotics 41. Trouble doing a nine step heel to toe straight line walk test with fingers slightly in pockets [The patient should not sway or need their hands pulled out to prevent a fall]. In patients with past experience in skating, skiing, dance or ballet this should be very easy and is rarely a challenge to such people. If it is not easy, it is suspicious medically, but not only for Lyme disease. 42. Trouble performing a one leg lift, in which one leg is lifted 12-18 inches off the ground in front of you, as you count, e.g., “one Mississippi, two Mississippi, etc.” 43. Positive nystagmus [your eye jerks when you look right or left] PATIENT’S REPORTED PHYSICAL HISTORY 44. Illnesses that come and go and decrease functioning with no certain cause 45. Serious illnesses that undermine function with no clear cause, and which affect more than one body organ 46. An abnormal lab result, physical exam finding or illness that is given many diagnoses or has no clear cause. 47. Mild to severe neurological disorders or psychiatric disorders 48. A very profound neurological disease which does not clearly fit the labs, studies and course of the illness 49. A moderate or severe medical, psychiatric or neurological illness. [Many severe disorders can be associated with spirochetes such as those causing syphilis, and some propose that Lyme is also related to a well-known serious brain disease]. 50. Severe medical, psychiatric or neurology illness with uncommon features, such as Parkinson’s disease, appearing at a young age 51. Facial paralysis (Bell’s palsy) 52. Personality has changed negatively and significantly for no clear reason. 53. Psychosis at any age, but especially after 40 years of age when usually it would have already manifested itself 54. Severe anxiety 55. Mania or profound rage 56. Depression 57. Depression or anxiety that did not exist when you were less than 25 years of age 58. Irritability 59. Any one of the following: paranoia, dementia, schizophrenia, bipolar disorder, panic attacks, major depression, anorexia nervosa or obsessive-compulsive disorder. 60. Adult onset ADHD/ADD [Primary psychiatric biological ADD or ADHD is present at 7 years of age. Adult onset is a sign of a medical condition.] 61. Increased verbal or physical fighting with others 62. Functioning at work or in parenting is at least 20% reduced 63. Patience and relational skills are decreased by 20% or more 64. A mild to profound decrease of insight, i.e., an infected patient does not see their decreased function, failed treatment or personality change 65. A new eccentric rigidity to hearing new medical or other important information 66. Difficulty thinking or concentrating 67. Poor memory and reduced ability to concentrate 68. Increasingly difficult to recall names of people or things 69. Difficulty speaking or reading 70. Difficulty finding the words to express what you want to say 71. Inability to learn new information as well as in the past [receptive learning] 72. Repeating stories or forgetting information told to close relations, such as a spouse, roommate, sibling, best friend or parent 73. Confusion without a clear reason 74. An addiction that results in relapse in spite of sincere, reasonable and serious efforts to stop 75. Fatigue in excess of normal, or fatigue that is getting worse 76. Trouble sleeping including mild to severe insomnia and disrupted sleep 77. Sleep in excess of 9 hours a day or night, or sleeping in excess of 9 hours every day if allowed 78. Trouble falling asleep 79. Trouble staying asleep [Taking a 5 minute bathroom break does not count] 80. Gastritis or stomach sensitivity not caused by H. Pylori 81. Intestinal troubles that are unable to be fully managed and/or which have no clear diagnosis 82. Nausea without a clear reason 83. Sensitivity to lights, sounds, touch, smell or unusual tastes 84. Sensitivity to cleaning chemicals, fragrances and perfumes 85. Ear problems such as pain or increased ear “pressure.” 86. Any trouble with the senses (vision, sound, touch, taste or smell). The use of corrective lenses or contacts does not count, unless the prescription is changed more than expected. 87. Buzzing or ringing in ears 88. Double vision, floaters, dry eyes, or other vision trouble 89. Conjunctivitis (pinkeye) or occasional damage to deep tissue in the eyes 90. Blood clots fast when you get a cut, or you have a diagnosed problem with clotting. This may also be seen in blood draws where blood draw needle clots when blood is being removed. If on a blood thinner, blood thinness level goes up and down too much. 91. Cardiac impairment 92. Chest pain with all labs and studies in normal range 93. Occasional rapid heartbeats (palpitations) 94. Heart block/heart murmur 95. Heart valve prolapse 96. Shortness of breath with no clear cause on pulmonary function tests, examination, lab testing, X-rays, MRI’s, etc. 97. Air hunger or feelings of shortness of breath 98. Someone in your neighborhood within 400 yards in any direction of your dwelling has been diagnosed with a tick borne infection. [This includes vacation locations]. 99. You have someone living with you with any type of tick-borne infection—this assumes they were not merely tested for one infection. [it is not proven that the small Lyme-carrying ticks only carry Lyme, and it is possible some carry other infections without carrying Lyme at all]. 100. You have removed any ticks from your body in your lifetime. 101. You have removed ticks from your clothing in your lifetime. 102. After a tick or bug bite, you had a fever for at least 48 hours. 103. After a tick or bug bite, you were ill. 104. Grew up or played in areas with many small wild mammals. 105. When you are in a room that has visible mold or smells like mold and you start to feel ill, you do not return to your baseline health in 24 hours. 106. Any discomfort within two minutes of being in a musty or moldy location 107. Gaining or losing weight in a manner clearly inconsistent with diet and exercise 108. New or more food allergies than ten years ago 109. Feel worse after eating breads, pasta or sweets 110. No longer tolerate or enjoy alcohol 111. Anti-histamines are bothersome, more so than in the past. 112. Reaction to medications is excessive (you are very “sensitive” to medications) 113. Your response to antibiotics is significantly positive and you feel more functional, or you have the opposite reaction and feel worse, feeling ill, fatigued or agitated. 114. Numbness, tingling, burning, or shock sensations in an area of skin 115. One or more troublesome skin sensations that move over months or years and do not always stay in one location 116. Rash or rashes without a simple and obvious cause 117. Rashes that persist despite treatment 118. Eccentric itching with no clear cause 119. Hair loss with no clear cause 120. Muscle pain or cramps 121. Muscle spasms 122. Muscle wasting without a clear cause 123. Trouble with your jaw muscle(s) or joint insomnia (TMJ) 124. Joint defects in one joint with no clear cause if 20 or younger Joint defects in two joints or more if 35 or younger Joint defects in three or more locations if younger than 55 with no clear trauma 125. Swelling or pain (inflammation) in the joints. [Most patients never have joint disease]. 126. Joint pain that shifts location 127. Neck stiffness 128. Chronic arthritis with or without episodes of swelling, redness, and fluid buildup 129. Chronic pain in excess of what seems reasonable 130. Nerve pain without a clear cause 131. Headaches that do not respond fully to treatment, or which are getting worse 132. New allergies or increased allergies over those of your peers 133. Any autoimmunity–Lyme and other tick infections, over many years, increase inflammation and decrease anti-inflammation chemicals. We believe this leads to increased food sensitivities, increased autoimmunity and a heightened sensitivity to various chemicals and medications. 134. Day time sweats 135. Night time sweats 136. Chills 137. Flu-like symptoms 138. Bladder dysfunction of any kind 139. Treatment resistant interstitial cystitis 140. Abnormal menstrual cycle 141. Decreased or increased libido 142. Increased motion sickness 143. Fainting 144. A spinning sensation or vertigo
  20. and like jamie said, i always feel better if i drink more water before i go to bed, and if i have several drinks, notice my bp is low the next day if I dont drink extra water and eat bfore bed. i love gatorade without the fructose and fresh sliced cucumber on ice with smirnoff (unflavored)
  21. i tolerate fine....however I only drink vodka with fresh lemon or grapefruit not much wine anymore:( 2 much sugar. It calms me down with adrenal surges, tolerate stress better, makes me feel more "normal" helps me sleep etc. I also take generic klonopin in the a.m. but that doesn't affect anything when I drink, i guess it's cuz I'm on a low dose of it, 1mg per day in the a.m., and when I drink it's in the evening. also helps to lower my bp and hr mysteriously lol.
  22. so sorry Jamie. I have had a really bad start to 2013 too....the flu for over 2 weeks, now I think I am going thru a herx. Ugh. Are you still doing the midridone?
  23. come to think of it, i think saperstein did do some testing for small fiber neuropathy on his funny computer but it didn't show anything.
  24. not all pots patients pass out, I don't but some do which is why I thought that was interesting. However more pots patients that I know or have a personal relationship with didn't seem 2 benefit off of bb's, thats just what I have observed, just saying. more issues come into play I suppose, such as parasites/lyme/protozoa, eds, mcad, etc.
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