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Lisa- Do you have his contact info? I would really like to try to get it in and see him! Thanks!

I would really like to know if anyone knows of a good doctor with background of this illness who practices in Florida. In my experience, there has only been 1 out of the 30+ doctors I have seen in my area who know even a little about this illness, but not enough to thoroughly treat or diagnose! Please help if anyone has any info!! Thank you! Amanda

alex74alex- I took propanolol 10 mg for about 2-3 years and still had breakthroughs of tachycardia too. My cardiologist at the time bumped it up to 10 mg 2x a day, which seemed to make a slight difference but not enough . This type of beta-blocker crosses the blood brain barrier, which can be a reason for your nightmares and the other symptoms you metnioned. I too had those similar side effects to the proponalol so I switched to atenolol 12.5mg, which I take once a day and have had better results. No issues with tachycardia at all! Yes I am lightheaded, dizzy, and disoriented ,but I'm pretty sure its symptomatic of POTS/ Dysautonomia. So who knows!! But you may want to consider trying a different beta-blocker just to see if you get better results.

I too experience feelings of lightheatedness, dizziness, disorientation, blurred vision, visual distortion, migraines and spaciness. These are many of the underlying symptoms related to POTS/ dysautonomia that I experience on a daily basis . Some days are obviously worse than others, but almost every day I have these symptoms.I have had POTS now for about 6 years and have only recently within the last year and half had a diagnosis. For many years I let this illness and these symptoms debilitate me, until one day I just accepted that right now I cant control everything I am feeling however, oneday I hope to, but in the meantime what I can control is how I will let this illness dictate my life. I now live a pretty "functional" life. I graduated from college not too long ago, I work 4 days and week, I still manage to go shopping when I want, clean my house, and still maintain somewhat of a social life. I hope to one day not have to suffer through these symptoms everyday. Many days I am tough and I try not to let all of this effect my place and space in this world, but I am human and I know how frustrating waking up everyday feeling like crap is like and because of that I understand that every day having this illness it is a constant battle. But I will keep fighting the battle!!

Beta blockers have been a life savor for me.. they have given me somewhat of my life back.. They helped eliminate the "inappropriate sinus tachycardia" ( so the doctors were calling it) which was the diagnosis before I realized that the rapid heart racing I was experiencing was a symptom of POTS/ dysautonomia. For an entire year I ended up in the E.R. a total of 5x before getting the tachycardia under control! I was afraid of my own shadow not knowing what was happening in my body. Once I got on the beta blocker I stopped having issues with my heart racing.